Resources for Learning About ALS

We’re committed to providing you with quick, easy access to a variety of resources related to ALS – from fact sheets and publications and videos produced by the Association to book recommendations and resource guides.

Links to websites outside of The ALS Association are provided for your browsing convenience but do not represent formal endorsement of their content.

To order physical copies of these resources, visit our order portal.

97 results
ALS Association
Familial ALS Resource Booklet
It can be overwhelming to learn that you or a family member has ALS. Receiving the diagnosis of familial ALS can raise extra questions and concerns about the future. This booklet will help answer these questions and provide information to support you and your family.
Guide / Manual
ALS Association
Daily Activities Made Easier for People with ALS
This manual discusses what aspects of that task people with ALS may have difficulty with and provides possible ways to make the challenges smaller or to compensate by using adaptive equipment.
Guide / Manual
ALS Association
Living with ALS Resource Guides
These cornerstone educational materials were designed to inform and educate people about ALS in a comprehensive and easily understood format.
Guide / Manual
ALS Association
Families and ALS Resource Guide
This resource guide is the result of many years of clinical social work practice and research with families, children, and youths affected by neurological illness.
Guide / Manual
ALS Association
Advocacy Webinars
We regularly bring together leaders in the fight against ALS to share the latest developments in the work being done to make ALS livable for everyone, everywhere until we find a cure.
Webinar / Video
ALS Association
ALS Progress Webinars
We regularly bring together leaders in the fight against ALS to share the latest developments in the work being done to make ALS livable for everyone, everywhere until we find a cure.
Webinar / Video
ALS Association
Obtaining an ALS Diagnosis
I have a few symptoms that make me worry that I might have ALS. I’ve heard it sometimes takes a long time to know for sure if you have the disease. I think it’s time to see a doctor. Should I go to my general practitioner? And what tests are needed to make the diagnosis?
Ask the Doc
ALS Association
What Do Fasciculations or Muscle Twitching Mean?
Many people who have muscle twitching worry that they have ALS since it’s often associated with the disease. If a person has muscle twitches a lot, or even daily, could it be the beginning of ALS?
Ask the Doc
ALS Association
Male Caregiver in the Restroom
This sign is a communication tool to inform the public that a caregiver is assisting a person living with ALS in the restroom.
Signage
ALS Association
Female Caregiver in the Restroom
This sign is a communication tool to inform the public that a caregiver is assisting a person living with ALS in the restroom.
Signage
ALS Association
Social Distancing Door Sign
This sign is a communication and educational tool to help inform medical providers and house guests.
Signage
ALS Association
Medical Information Packet
This packet is a communication and educational tool to help inform medical providers.
Medical Packets
ALS Association
Youth Education and Support
Based on subject matter-specific research, three youth education books were developed for children, teens, and young adults.
Resources