End of Life Plans for People with ALS
After receiving a diagnosis of ALS, everyone reacts differently. No matter what your reaction, at some point you begin making decisions and planning for the future. As ALS progresses, you will have thoughts and conversations along the way about planning ahead for various treatments as well as planning for the latter stages and end of life. Your decisions about what you want may change over time, so it’s a good idea to keep revisiting them with your loved ones and health professionals so your wishes are known and respected.
Ultimately, you are the decision maker.
But you are not alone. Seek the support of family and friends, your ALS clinic team, other people and families living with ALS, and your local ALS Association Chapter.