Support for Caregivers

Being the primary caregiver for a loved one with ALS can be stressful — not only are you on call 24/7, but you may have additional outside responsibilities, like working a full- or part-time job. Often, caregivers are so busy supporting their loved ones that their own physical or mental health takes second priority. 

But as a caregiver, it’s important that you get the support and assistance you need so you can care for your loved one to the best of your abilities. 

That’s why we make it a priority to provide resources, such as education and support groups, for caregivers of ALS patients, and we do our best to alleviate the burden of ALS for patients and their families.


Caregiving Statistics

  • Nearly 53 million people in the United States provide care to a chronically ill, disabled, or aging family member or friend during any given year. 

  • Caregivers spend an average of 24 hours per week providing care for their loved one. 

  • 61% of all caregivers in the United States are female, and the average age of a caregiver is 49. 

  • 51% of caregivers feel their role has given them a sense of purpose or meaning.

  • One in 5 caregivers report high financial strain as a result of caregiving (18 percent). Four in 10 have experienced at least one financial impact as a result of their caregiving (45 percent).

All data, unless otherwise cited, is from the National Alliance for Caregiving and AARP’s Caregiving in the US Survey


November is National Family Caregivers Month, a time to recognize and honor the tremendous contributions of family caregivers. Caregiving for someone with ALS has a broad and lasting impact, in both daily life and long-term well-being. Download this infographic about caregiving and share on your social platforms to support a caregiver you know.

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