Support for Caregivers

Being the primary caregiver for a loved one with ALS can be stressful — not only are you on call 24/7, but you may have additional outside responsibilities, like working a full- or part-time job. Often, caregivers are so busy supporting their loved ones that their own physical or mental health takes second priority. 

But as a caregiver, it’s important that you get the support and assistance you need so you can care for your loved one to the best of your abilities. 

That’s why we make it a priority to provide resources, such as education and support groups, for caregivers of ALS patients, and we do our best to alleviate the burden of ALS for patients and their families.


Caregiving Statistics

  • 68% of ALS caregivers said they spent more than 30 hours per week providing care to their loved one.
  • Almost ½ of caregivers said that they felt unprepared for changes in caregiving responsibilities as ALS progresses.
  • Costs for medical treatment and services topped the list of stressors for people with ALS and their caregivers.
  • One out of four people with ALS and caregivers said that they had to borrow money or go into debt because of their ALS treatment or to provide caregiving, respectively.
  • 44% of ALS caregivers cited depression as a top concern.

All data, unless otherwise cited, is from The ALS Association Focus Surveys.


November is National Family Caregivers Month, a time to recognize and honor the tremendous contributions of family caregivers. Caregiving for someone with ALS has a broad and lasting impact, in both daily life and long-term well-being. Download this infographic about caregiving and share on your social platforms to support a caregiver you know.

Print Friendly and PDF