Support for Caregivers

Being the primary caregiver for a loved one living with ALS can be stressful. In addition to being on call 24/7, you may have additional responsibilities, like working a full- or part-time job and taking care of children.

Caregivers are often so busy supporting their loved ones that their own physical or mental health takes second priority. It’s important that you get the support and assistance you need so you can care for your loved one to the best of your abilities.

We want to help alleviate your burden through tips, hints, information and in-depth resources about caregiving, support groups for caregivers of people living with ALS, practicing self-care, coping with burnout, respite care, and more.


Caregiving Statistics

  • 68% of ALS caregivers said they spent more than 30 hours per week providing care to their loved one.
  • Almost ½ of caregivers said that they felt unprepared for changes in caregiving responsibilities as ALS progresses.
  • Costs for medical treatment and services topped the list of stressors for people with ALS and their caregivers.
  • One out of four people with ALS and caregivers said that they had to borrow money or go into debt because of their ALS treatment or to provide caregiving, respectively.
  • 44% of ALS caregivers cited depression as a top concern.

All data, unless otherwise cited, is from The ALS Association Focus Surveys.


November is National Family Caregivers Month, a time to recognize and honor the tremendous contributions of family caregivers. Caregiving for someone with ALS has a broad and lasting impact, in both daily life and long-term well-being. Download this infographic about caregiving and share on your social platforms to support a caregiver you know.

Care Connection
ALS Care Connection is a simple online tool that helps organize the community of people who want to help. It coordinates their efforts to more efficiently support families impacted by ALS.
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