- 68% of ALS caregivers said they spent more than 30 hours per week providing care to their loved one.
- Almost ½ of caregivers said that they felt unprepared for changes in caregiving responsibilities as ALS progresses.
- Costs for medical treatment and services topped the list of stressors for people with ALS and their caregivers.
- One out of four people with ALS and caregivers said that they had to borrow money or go into debt because of their ALS treatment or to provide caregiving, respectively.
- 44% of ALS caregivers cited depression as a top concern.
All data, unless otherwise cited, is from The ALS Association Focus Surveys.
November is National Family Caregivers Month, a time to recognize and honor the tremendous contributions of family caregivers. Caregiving for someone with ALS has a broad and lasting impact, in both daily life and long-term well-being. Download this infographic about caregiving and share on your social platforms to support a caregiver you know.