Participating in ALS research is a powerful way to help advance new treatments, improve care, and bring us closer to a cure. If you’ve ever thought about participating in research or are just hearing about it for the first time, we hope you will join us for Clinical Research Week, a weeklong series of free webinars happening daily from January 27 to January 31.

Navigating an ALS diagnosis is daunting enough without the added challenges of health insurance denials and appeals. For Chris, the journey to accessing critical medication sheds light on the obstacles many in the #ALS community face and serves as a beacon of hope for those in similar situations.

We are thrilled to announce the second annual ALS Nexus will be happening August 11–14, 2025, at the Gaylord Texan Resort and Convention Center in Grapevine, Texas, just outside Dallas. Building on the inspiring conversations and groundbreaking collaborations from last year, ALS Nexus 2025 promises to be even more impactful.

Evidence is emerging that not only is functional improvement possible, it’s happening for some people with SOD1-ALS who have been treated with Qalsody® (tofersen).

Tara Warren was looking for a way to connect her passion for endurance racing and the fight to end ALS to honor her mom who passed away from the disease. Four grueling races and 400 miles later, she did just that.

Whether you're living with ALS, a caregiver, or a loved one, your story holds the potential to illuminate the realities of this disease, break down misconceptions, and offer a sense of solidarity to others navigating similar day-to-day challenges. Here are just a few stories we’ve recently shared.

The ALS Association has awarded five new grants through our Lawrence and Isabel Barnett Drug Development Program. These grants—totaling $2.2 million dollars over the next two years—will support the continued preclinical development of five emerging ALS therapies in preparation for clinical testing.

As 2024 comes to a close, we remain energized by the gains made for people living with ALS, their families and caregivers, and are excited about 2025 and even more progress. Here are the top ten blogs you've enjoyed the most.

Pete Frates didn't wallow in his ALS diagnosis. Instead, he quickly turned his focus toward advocacy and raising awareness about the disease. His determination became the driving force behind what would eventually become the ALS Ice Bucket Challenge, the social media phenomenon that would change the course of ALS forever. 

Across our mission, we’ve witnessed incredible strides in the fight against ALS in 2024. We’re excited to share some of the impactful achievements we’ve made this past year, all thanks to your support.

When Michael Wilson was diagnosed with ALS in 2017, he, his wife Wendy and their daughter Londyn quickly learned that the disease would impact every part of their lives, big and small. But the Wilsons still find joy in the time they have together, allowing themselves the grace to laugh at whatever life throws at them.

While Sunny Brous received her ALS diagnosis all by herself, her journey has been anything but solitary. From the beginning she has leaned into the ALS community and found that the community was there waiting for her with open arms.

Researchers at Tiziana Life Sciences, Brigham and Women’s Hospital, and Mass General Hospital are developing a nasal spray that helps reduce inflammation in the brain and spinal cord. This experimental therapy, called foralumab, has been shown to decrease neuroinflammation in a small group of people with multiple sclerosis and help stabilize their disease.

For Cory Mosley, learning he had ALS was more than a diagnosis, it was the continuation of a family legacy. But thanks to progress in research and treatments, Cory has something that others in his family did not have years ago as they faced ALS: hope.

Giving Tuesday, the global day of giving celebrated on the Tuesday following Thanksgiving, is a powerful reminder that each of us has the ability to make a meaningful difference. On this day, individuals, families, and communities come together to support causes close to their hearts, united by the belief that generosity has the power to change lives. Our goal is clear: to make ALS a livable disease for everyone, everywhere, until we can cure it.

For people living with ALS and their caregivers, the prospect of holiday travel may feel a little overwhelming, but with thoughtful planning and a positive outlook, it can also be deeply rewarding. Here are some tips to help with your holiday planning.

This November, during National Family Caregivers Month, we are shining a light on the vital, sometimes unseen role ALS caregivers play for people living with the disease, including those who don’t fit the mold of what we often THINK of as an ALS caregiver.

ALS Care Connection is a private online calendar that can be used to support the entire family by organizing volunteers from your community – friends, neighbors, members of community organizations like your church, or other service groups – that can help with day-to-day responsibilities for families impacted by ALS.

In recognition of young caregivers everywhere, we honor not only their sacrifices, but also the extraordinary love they hold for their parents. Their powerful stories are a reminder to cherish each moment, to find joy in the small things, and to never lose hope—even when the path forward is challenging.

By integrating diverse perspectives and new expertise into the ALS research community, we are helping accelerate progress and drive discovery. See how we're supporting early-career and new investigators to help make ALS livable until we can cure it.