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From Isolation to Hope: Sunny’s ALS Journey
While Sunny Brous received her ALS diagnosis all by herself, her journey has been anything but solitary. From the beginning she has leaned into the ALS community and found that the community was there waiting for her with open arms.
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Cory Mosley’s ALS Journey, and Hope for the Future
For Cory Mosley, learning he had ALS was more than a diagnosis, it was the continuation of a family legacy. But thanks to progress in research and treatments, Cory has something that others in his family did not have years ago as they faced ALS: hope.
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Giving Tuesday: A Day to Make a Difference
Giving Tuesday, the global day of giving celebrated on the Tuesday following Thanksgiving, is a powerful reminder that each of us has the ability to make a meaningful difference. On this day, individuals, families, and communities come together to support causes close to their hearts, united by the belief that generosity has the power to change lives. Our goal is clear: to make ALS a livable disease for everyone, everywhere, until we can cure it.
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A Mom Is Always a Mom: An ALS Caregiver Story
This November, during National Family Caregivers Month, we are shining a light on the vital, sometimes unseen role ALS caregivers play for people living with the disease, including those who don’t fit the mold of what we often THINK of as an ALS caregiver.
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Helping ALS Caregivers Tend to the Everyday
ALS Care Connection is a private online calendar that can be used to support the entire family by organizing volunteers from your community – friends, neighbors, members of community organizations like your church, or other service groups – that can help with day-to-day responsibilities for families impacted by ALS.
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Caring Beyond Their Years: The Journey of Young ALS Caregivers
In recognition of young caregivers everywhere, we honor not only their sacrifices, but also the extraordinary love they hold for their parents. Their powerful stories are a reminder to cherish each moment, to find joy in the small things, and to never lose hope—even when the path forward is challenging.
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“We Need to Be Empowered”: Keeping Caregivers Front and Center in ALS Care
ALS caregivers each bring different life experiences to the role they are thrown into. But one thing they do have in common is that they are all doing the best they can, each and every day. It is up to all of us in the ALS community to support them and empower them as we strive to make ALS livable for everyone, everywhere, until we can cure it.
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Nick Martin: A Veteran’s Legacy of Service Continues
Even though he hung up his Army fatigues decades ago, Nick, a veteran living with ALS, continues to step up when someone in the community needs help, supporting those around him with the same commitment to selfless service he embraced while in uniform.
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Nationwide Connect: A Lifeline for ALS Caregivers
Caring for someone living with ALS is a unique journey, often filled with emotional and physical challenges. Our Nationwide Connect support groups offer a space for caregivers to connect, share, and find strength together.
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Respiratory Care: Understanding Your Options and Making Informed Decisions
For people living with ALS, respiratory health is often one of the first things your care team will discuss with you and your family, and for good reason. Being proactive about planning and making decisions before they need to be made can be key to helping you live the life you choose throughout your journey.
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