While local conditions for events vary state by state, the priority is the safety and well-being of people with ALS, their families and caregivers, and our volunteers and staff. So while Walk to Defeat ALS® events may look a little different from place to place, the ALS community will creatively come together safely in local markets to honor a loved one with the disease, to remember those who have passed, and to raise awareness and critical fundraising support for the fight against ALS.
On the one year anniversary of COVID-19 shutting down the world, Executive Director John Hedstrom of The ALS Association Massachusetts Chapter pens a letter to update the local community on the Chapter's ambitious goals and an exciting new event.
While good nutrition is important for everyone, maintaining proper nutrition and hydration is especially critical for people living with ALS. Sustaining a healthy weight and balanced diet is proven to help improve and maintain quality of life for people struggling with the disease.
Rare Disease Day® is an opportunity to recognize strength in coming together. It is estimated there are more than 7,000 rare diseases affecting 25-30 million Americans. That means one in ten Americans suffer from a rare disease, including people living with ALS.
ALS Focus recently launched its third survey, gathering data from ALS caregivers to identify the unique needs and challenges of ALS caregiving. Responses to this survey will help translate the caregiver experience into action and influence ALS programs and policy decisions. ALS Focus Director Dr. Sarah Parvanta detailed the questions her team is asking in the current survey during a recent episode of Connecting ALS. A portion of that conversation has been edited and condensed below.
The Marcia LaRiche Scholarship Fund can assist dependent sons and daughters of parents who have been diagnosed with Amyotrophic Lateral Sclerosis (ALS) living in northeast Ohio finance their education at a postsecondary institution of their choice.
Connecting ALS recently sat down with Dr. Ericka Greene, Director of the Neuromuscular Clinic Houston Methodist Stanley H. Appel Department of Neurology to learn more about her personal experience working in ALS research and growing up in the STEM field to understand this trend from her perspective.
ALS can take away many things, but one thing it cannot take away is love. In celebration of Valentine’s Day, we wanted to highlight one of many stories of love, commitment and ALS. Meet Jonathan and Janetta Michelsen.
As Feeding Tube Awareness Week comes to a close, we spoke with Brenda and Kelly Kraft and asked them to share their family’s story about their personal experience with making this difficult decision, and the relief they felt once they had made it.
This week the world turned their focus to the celebration of women and girls in science, shining a light on the tremendous gender gap that still exists in the world of science. We asked Jill Yersak, Ph.D., Vice President of Mission Strategy at The ALS Association about her personal experience growing up in the STEM field.
Don and Alice Worden have been married for 42 years. Don is living with ALS, but the couple live their lives to the fullest and enjoy the little things that bring constant love. This is the perfect Valentine's Day love story. <3
The ALS Association recently hosted an COVID-19 update webinar for the ALS community, with panelists Dr. Lou Libby, Dr. Richard Bedlack, Dr. Cherise Rohr-Allegrini, Dr. Urvi Desai and Dr. Marinella Galea, moderated by ALS Association Board of Trustees member Dr. Ken Menkhaus, addressing issues specific to the concerns and interests of the ALS community.
Through word of mouth, Stuart and his wife Marcia found five or six families in their community who were also dealing with the impact of an ALS diagnosis. They started an informal support group. The group started working with the chapter relations team at The ALS Association and formed The ALS Association Alabama Chapter.