While Sunny Brous received her ALS diagnosis all by herself, her journey has been anything but solitary. From the beginning she has leaned into the ALS community and found that the community was there waiting for her with open arms.

Researchers at Tiziana Life Sciences, Brigham and Women’s Hospital, and Mass General Hospital are developing a nasal spray that helps reduce inflammation in the brain and spinal cord. This experimental therapy, called foralumab, has been shown to decrease neuroinflammation in a small group of people with multiple sclerosis and help stabilize their disease.

For Cory Mosley, learning he had ALS was more than a diagnosis, it was the continuation of a family legacy. But thanks to progress in research and treatments, Cory has something that others in his family did not have years ago as they faced ALS: hope.

Giving Tuesday, the global day of giving celebrated on the Tuesday following Thanksgiving, is a powerful reminder that each of us has the ability to make a meaningful difference. On this day, individuals, families, and communities come together to support causes close to their hearts, united by the belief that generosity has the power to change lives. Our goal is clear: to make ALS a livable disease for everyone, everywhere, until we can cure it.

For people living with ALS and their caregivers, the prospect of holiday travel may feel a little overwhelming, but with thoughtful planning and a positive outlook, it can also be deeply rewarding. Here are some tips to help with your holiday planning.

This November, during National Family Caregivers Month, we are shining a light on the vital, sometimes unseen role ALS caregivers play for people living with the disease, including those who don’t fit the mold of what we often THINK of as an ALS caregiver.

ALS Care Connection is a private online calendar that can be used to support the entire family by organizing volunteers from your community – friends, neighbors, members of community organizations like your church, or other service groups – that can help with day-to-day responsibilities for families impacted by ALS.

In recognition of young caregivers everywhere, we honor not only their sacrifices, but also the extraordinary love they hold for their parents. Their powerful stories are a reminder to cherish each moment, to find joy in the small things, and to never lose hope—even when the path forward is challenging.

By integrating diverse perspectives and new expertise into the ALS research community, we are helping accelerate progress and drive discovery. See how we're supporting early-career and new investigators to help make ALS livable until we can cure it.

ALS caregivers each bring different life experiences to the role they are thrown into. But one thing they do have in common is that they are all doing the best they can, each and every day. It is up to all of us in the ALS community to support them and empower them as we strive to make ALS livable for everyone, everywhere, until we can cure it.

Even though he hung up his Army fatigues decades ago, Nick, a veteran living with ALS, continues to step up when someone in the community needs help, supporting those around him with the same commitment to selfless service he embraced while in uniform.

Caring for someone living with ALS is a unique journey, often filled with emotional and physical challenges. Our Nationwide Connect support groups offer a space for caregivers to connect, share, and find strength together.

Cliff Eby shares his thoughts and advice on being a caregiver to someone living with ALS based on his experiences as father and co-caregiver to Brooke.

No matter where his lab equipment has been located, Dr. Akerman has been focused on untangling the underlying causes of neurodegenerative diseases like ALS.

For more than 50 years, Dr. Stanley Appel has devoted his life to finding solutions for people living with ALS. Learn more about his incredible work and his reasons for hope in ALS research and care.

For people living with ALS, respiratory health is often one of the first things your care team will discuss with you and your family, and for good reason. Being proactive about planning and making decisions before they need to be made can be key to helping you live the life you choose throughout your journey.

For Michelle Frederick, making ALS livable means giving people living with the disease choices to continue to do the things they care about in a way that works for them, including finding ways for them to stay where they are most at home: their own home.

California has made an important stride in the fight against rare diseases by becoming the 29th state to establish a Rare Disease Advisory Council (RDAC). Governor Gavin Newsom’s recent signing of the RDAC bill into law represents a tremendous victory for the rare disease community, including people living with ALS.

In 2025, important changes are coming to Medicare that could significantly impact how people living with ALS access prescription drugs and manage their out-of-pocket costs. Learn how YOU can benefit from these important new programs.

Dr. Merit Cudkowicz, director of the Sean M. Healey & AMG Center for ALS and chief of neurology at Massachusetts General Hospital, will never forget the very first person with ALS that she cared for.