My ALS Journey™

A diagnosis of ALS is overwhelming and frightening. It is filled with many unknowns, grief and change. The disease follows no predictable path and adheres to no set timeline. Planning ahead helps to alleviate some of the chaos of change, but how do you know what to plan for or what questions to ask?

My ALS Journey™ is an interactive, web-based tool that allows people living with ALS to take control of their journey with the disease.
My ALS Journey

Users can browse articles, view videos and find other helpful resources and information specific to any stage in their ALS journey.

With a personalized profile, individuals can learn about the appropriate—and time sensitive—interventions available to truly live stronger and better with ALS.

chat icon

your journey 

checklist icon

action items 

connect icon

Save and share
and resources 

Print Friendly and PDF