Informative Web Links

ALS Specific

ALS Forums and Chat 

An open support community for people affected by ALS/MND.

Bruce Edwards Foundation for ALS Research 

The Bruce Edwards Foundation provides funds to medical research facilities dedicated to slowing the progression of and finding a cure for Amyotrophic Lateral Sclerosis (ALS). The Foundation was created in memory of Bruce Edwards, who died from ALS after a 16-month struggle against the disease. Bruce was the longtime friend and caddy of PGA golfer Tom Watson.

Information for Teens / Young Adults 

ALS Society of Canada’s als411 resources for teens/young adults.

Project Revoice

Thanks to breakthroughs in voice technology, it's now possible to fully recreate the unique essence of any voice and build a complete digital voice clone for everyday use with Augmented / Alternative Communication (AAC) devices. Learn more at


ALS Genetic Mutation Database, the online database for ALS/SOD1 genetic mutations, is designed to provide both the scientific community and wider public with up-to-date information on SOD1 associated ALS.

ALS Patient Care Database 

ALS C.A.R.E. is a voluntary, physician-directed program to improve outcomes for patients diagnosed with amyotrophic lateral sclerosis.

ALS Therapy Development Institute 

A non-profit bio-tech organization whose mission is to seek, develop, and deliver therapies to slow, arrest, and cure ALS.

Dana Brain Web serves as a gateway to brain information, containing general information, current research and the latest news about the brain.  "Brainy Kids Online" offers a site with activities, puzzles, links to excellent educational resources, and lesson plan suggestions.

Health & Medical

Caring Connections 

Free resources and information to help people make informed decisions about end-of-life care and services before a crisis.

National/International Organizations

ALS Society of Canada 

This a national voluntary organization is committed to supporting research towards a cure for ALS and supporting ALS Partners in their provision of quality care for persons affected by ALS.

International Alliance of ALS/MND 

Associations on the Internet A group of more than 50 patient support and advocacy groups worldwide that have joined together to provide support and the exchange of information between the associations.

International Organizations, Motor Neuron Disease Association (UK) 

They are the only national organization in England, Wales and Northern Ireland dedicated to the support of people with MND and those who care for them.

The Les Turner ALS Foundation 

Provides resources and information to people with Lou Gehrig’s disease.


Transportation Safety Administration (TSA) 

Information for travelers with disabilities and medical conditions.