Resources

As a service to the ALS community, we have assembled various resouces, including publications and videos produced by The Association, other related books, fact sheets, as well as resource guides so that you can quickly and easily access information pertaining to a variety of subjects related to ALS.

Hyperlinks to websites outside of The ALS Association are provided as a browsing convenience and do not represent an endorsement of the linked site.  

65 results
ALS Association
FYI: Suspected Abuse
In our work at The ALS Association’s National Office and Chapters, we all encounter a variety of situations involving persons with ALS and their families.
Factsheet
ALS Association
FYI: Respiratory Challenges in ALS - Coughing
Coughing is a familiar, yet complex reflex action that functions to clear material from the airway. It protects the airway from irritants, saliva, or foreign particles that may have been inhaled (aspirated), and secretions, cellular debris, and microbes generated by the lungs or bronchial tree. Coughing can be involuntary; a reaction to inhaling a foreign particle or wayward food particle, or voluntary, intentionally taking a deep breath to clear mucus from the throat.
Factsheet
ALS Association
FYI: Oral Care for People Living with ALS
As ALS progresses, daily routines frequently change for people with ALS and their caregivers. Activities, those that were once automatic, may require either extra time and/or physical help. Oral care is one routine that can be easily forgotten.
Factsheet
ALS Association
FYI: Coping with Burnout
Being a caregiver of someone with ALS is a very important role. It usually involves a number of tasks that can be very time consuming, and can require a great deal of effort. If we do not learn to recognize that certain tasks and expectations can take their toll on us, regardless of what role(s) we play in life, we may find ourselves headed down the path of burnout.
Factsheet
ALS Association
FYI: Family Caregiving-Why Respite?
Being a family caregiver, while a fulfilling role, can consume a great deal of physical, mental and emotional energy. Consequently, respite care is very important because it gives family caregivers of persons with ALS an opportunity to create a plan of care for themselves; something a caregiver often overlooks.
Factsheet
ALS Association
FYI: Bill of Rights for People Living With ALS
The ALS Association prepared the Patient Bill of Rights to inform people living with ALS about their rights related to health care and health plan insurance coverage.
Factsheet
ALS Association
FYI: Second Opinion FAQs
The only way a person can begin to accept an ALS diagnosis is to be certain that the diagnosis is correct.
Factsheet
ALS Association
FYI: Reasons for Living with ALS
While staunchly supporting the right of people with ALS to make health care decisions affecting their life and death, The ALS Association believes just as strongly in the right for people to be fully informed about ALS including symptom management and comfort measures as ALS progresses.
Factsheet
ALS Association
FYI: Minimizing Fatigue
Be recognizing the signs of fatigue, knowing which factors worsen symptoms, and learning how to conserve energy, persons with ALS can greatly improve their quality of living.
Factsheet
ALS Association
FYI: Advance Directives
An advance directive is a legal document used to instruct others about your health care wishes. It acts as a guide for your loved ones and health care providers to make health care and treatment-related decisions on your behalf, should you become unable to convey them due to illness or incapacity.
Factsheet
ALS Association
Daily Activities Made Easier for People with ALS
This manual discusses what aspects of that task people with ALS may have difficulty with and provides possible ways to make the challenges smaller or to compensate by using adaptive equipment.
Guide / Manual
ALS Association
Living with ALS Resource Guides
These cornerstone educational materials were designed to inform and educate people about ALS in a comprehensive and easily understood format.
Guide / Manual
ALS Association
Families and ALS Resource Guide
This resource guide is the result of many years of clinical social work practice and research with families, children, and youths affected by neurological illness.
Guide / Manual
ALS Association
Familial ALS Resource Booklet
It can be overwhelming to learn that you or a family member has ALS. Receiving the diagnosis of familial ALS can raise extra questions and concerns about the future. This booklet will help answer these questions and provide information to support you and your family.
Guide / Manual