Through the active participation of people with ALS and their families, we have made some significant advances.
- Reducing the waiting period for people with ALS before receiving benefits under Social Security Disability Insurance from 2 years to 5 months
- Increasing federal funding for research efforts to find treatments and a cure for ALS
- Supporting the creation of and securing funding for the National ALS Registry, a Centers for Disease Control registry of people with ALS that helps scientists understand the disease and its causes
- Improving benefits for military veterans diagnosed with ALS
2020 Public Policy Priorities
Our federal advocacy work focuses on educating and mobilizing all members of Congress in a nonpartisan fashion to achieve the mission of The ALS Association
- Waive the Five-Month Waiting Period for Social Security Disability Insurance
- Protect Access to Noninvasive Ventilators
- Fairly Compensate Families of Veterans with ALS
- Preserve and Increase Federal Resources for ALS Research
- Expand Access to Telemedicine and Telehealth
- Represent People Living with ALS on Access to Health Care, Drugs and Therapies
Write to Your Representatives
Tell Congressional Leaders: It’s Time For a Vote on SSDI Access
Now that more than half of the House and Senate have cosponsored the ALS Disability Insurance Access Act, we have a real shot at moving this critical legislation, but we need congressional leaders to act urgently in support of people living with ALS. Help us continue this momentum by contacting congressional leaders and urging them to schedule a vote and pass the ALS Disability Insurance Access Act now.
Ask Your Members of Congress to Join the ALS Caucus
The bipartisan Senate and House ALS caucuses bring together members of Congress from both sides of the aisle to raise awareness about the challenges faced by people with ALS and their families, advance policies that improve the lives of people with ALS, expand the network of support for those suffering with the disease, and advocate for investments in research to discover a cure. Send a letter to your members of Congress and ask them to join the ALS Caucus today.