We are deeply alarmed by proposed cuts to research that will deal a devastating blow to the fight against ALS. Drastic changes to research funding will hinder progress toward turning ALS from fatal to livable. Reducing indirect cost funding for the National Institutes of Health (NIH) will cripple the ability of research institutions to sustain the infrastructure, ensure competitiveness, and grow the workforce necessary for groundbreaking discoveries. NIH and other government agencies are the largest funders of ALS research with more than $200M invested per year. These actions could set ALS research back decades and undermine American leadership.  

The ALS Association is proud to welcome Steve Hanon, Chief Operating Officer at AEON Learning Sciences, to the Board of Trustees.

See Which States Are Leading the Way to Help the ALS Community

Uniting the ALS Community to Accelerate Progress in ALS Research, Care, and Advocacy

Study Demonstrates Sustained Stabilization and Functional Recovery in SOD1-ALS Patients Treated with Qalsody (Tofersen)

We are proud to share that the Elizabeth Dole Home Care Act (H.R. 542/S. 141) has passed Congress and is now headed to President Biden for signature, another huge win for the ALS community.

The ALS Association is proud to announce that our President and CEO, Calaneet Balas, has been elected to the National Health Council (NHC) Board of Directors for a three-year term.

Medicare Advantage Insurance Plans Required to Cover Treatment for SOD1-ALS, Qalsody

Groundbreaking thinkALS™ Tool Empowers Providers to Identify and Refer Patients Quicker

The Tyler Street Foundation Awards a Grant to the ALS Association

Global Phenomenon Led to $1 Billion in ALS Research, Expanded Care Access, and Increased Government Support for ALS Programs

New Appointees Bring Diverse Expertise to Strengthen Efforts in the Fight Against ALS

If passed, The HEALTHY BRAINS Act would create a center at the National Institutes of Health (NIH) to conduct research on environmental and occupational risk factors for ALS and develop strategies to minimize those risks.

Groundbreaking New Report Stems from Advocacy Effort to Rally Government Support of Making ALS Livable

The ALS Association told the Secretary of the Department of Transportation (DOT) about the horrible experiences of ALS advocates when flying. This is part of our effort to make air travel safe and accessible for people living with ALS.

The ALS Association and Focused Ultrasound Foundation have partnered to support a small pilot clinical study that will leverage focused ultrasound technology as part of a new ALS treatment approach. The study will be led by Agessandro Abrahao, M.D., an assistant professor of neurology at the University of Toronto and an associate scientist at Sunnybrook Research Institute.

Signed Bill Means Safer Skies for Passengers with ALS

The ALS Association Helps Secure Easier Air Travel and Benefits for People Living With ALS

The American Academy of Neurology, The ALS Association and the American Brain Foundation have awarded the 2024 Sheila Essey Award to Eva Feldman, M.D., Ph.D., from the University of Michigan. Throughout her distinguished career, Feldman has shed light on biological processes that drive ALS development and progression, paving the way for the development of new therapies, including two first-ever human clinical trials of intraspinal stem cell implantation (injection) therapy for ALS.

Telemedicine for ALS Partnership Aims to Bridge the Gap in Care Delivery