We are the world’s leading ALS organization, made up of volunteers who are living with ALS, loved ones, caregivers, advocates, and dedicated staff. Our goal is to make ALS livable for everyone, everywhere, until we can cure it.  

On the ground in all 50 states, we are providing support for people living with ALS and their loved ones while funding the most promising ALS research in the world. We are also leading local and national advocacy efforts to deliver more funding for ALS research and better policies for those impacted by the disease.  

Thanks to the ALS Ice Bucket Challenge and the generous support of our donors, we have been able to dramatically accelerate the fight against ALS by funding the development of new ALS treatments, by discovering new ALS genes, by creating new global research collaborations, and by significantly expanding access to ALS care.  

Our commitment is that every person living with ALS, regardless of where they live, should be able to access high-quality care and effective treatments.  

Read more about what we do