Informational Fact Sheets
Resources to Help in Living with ALS
We want to help you live with ALS and help your caregivers feel confident in their role. Here are nearly 60 fact sheets and guides to give you and your loved ones information about everything from benefits, caregiving and home care to research, speech and swallowing, alternative treatments and more.
Benefits
Caregivers
- Oral Care for People Living with ALS
- For Caregivers - Coping with Burnout
- Family Caregiving-Why Respite?
- Cognitive and Behavioral Changes in ALS: A Guide for People with ALS and their Families
- Caregiver's Bill of Rights
Newly Diagnosed
- Viatical Settlements & Accelerated Insurance Benefits
- The ALS Association's Patient Bill of Rights for People Living With ALS
- Second Opinion FAQs
- Reasons for Living with ALS
- Minimizing Fatigue
- Be a Careful Internet User
- Advance Directives: Make Your Health Care Preferences Known
For People with ALS
- Suspected Abuse
- Respiratory Challenges in ALS - Coughing
- Pain in ALS
- Orthotic Devices
- Mobility and ALS
- Information about Mucus Plugs
- Influenza and ALS
- Emergency Preparedness for People with ALS
- Driving Challenges with ALS
- Dressing with Ease, Style and Comfort
- Breathing Difficulties
- A Guide to Voice Banking Services
- Clinical Trials for ALS
Home Care
- How to Know When to Hire In-home Help
- Home Health Care Glossary
- Medicare and Home Health Care
- Choosing a Home Health Care Agency
- Paying for Home Care
- Different Types of Home Care Workers
- Hiring In-home Help Independently
- Home Adaptations
- Working Successfully with In-home Service Providers
- Planning for the Future
- Respite
- Hospice
- Living with ALS at Home Booklet
- Medicare and Home Health Information
Research
- Nursing Management in ALS
- Glutamate Research Could Lead to ALS Treatment
- Familial Amyotrophic Lateral Sclerosis (FALS) and Genetic Testing
- Epidemiology of ALS and Suspected Clusters
- Criteria for the Diagnosis of ALS
- Brain-Computer Interface (BCI)
- ALS, Cognitive Impairment & Dementia
Speech/Swallowing
- Suggestions and Information about Speech Changes & Augmentative Alternative Communication (AAC)
- Managing Excessive Saliva
- Information About Feeding Tubes
- High Calorie and Easy to Chew Recipes
- Safe Swallowing: What I Need to Know and Why it Matters
- PEGS and Nutrition in People with ALS
Alternative Treatments
Veterans Living With ALS
Information and resources for Veterans and their family
