Clinical trials have proven to be the most reliable way — and ultimately the fastest way — to discover treatments that really work. The goal of clinical trials is to answer specific scientific questions to find better ways to prevent, detect, or treat ALS, or to improve care for people with ALS. People with ALS, along with family members and caregivers, are essential partners in this research. There are many ways you can search for a clinical trial, whether you want to participate in a trial or simply to get more information.
With support from The ALS Association, The NEALS consortium — the largest international consortium of clinical trials and sites — provides up-to-date information for finding both interventional and observational trials.
- Highlight: In addition to the website search function, people with ALS and their caregivers can speak directly with Carly Allen, the ALS Trial Liaison and Communications Manager at NEALS at (855) 437-4823 or firstname.lastname@example.org. The links to individual trials also provide information on the Principal Investigator, the study’s purpose/summary, eligibility criteria, and trial contact information.
IAMALS has developed a search tool for clinical trials called ALS Signal, which also provides up-to-date information for finding both interventional and observational trials.
- Highlight: The Signal provides graphics of the various stages of clinical trials across the world. The links to individual trials link back to www.clinicaltrials.gov. The PaCTD ratings are provided for each trial meeting a criteria of patient-centric trial design including access to experimental therapies, scientific progress, and being patient-friendly.
ClinWiki has developed an ALS-specific search tool which also provides information for finding both interventional and observational trials.
- Highlight: Trials can be searched through various categories such as ALS onset, breathing ability, remote monitoring, etc.
Clinicaltrials.gov is a Web-based resource maintained by the National Institutes of Health (NIH) and provides information on finding interventional and observational trials.
- Highlight: Information is provided and updated by the trial sponsor or principal investigator of the clinical study. It is the largest database of privately and publicly funded clinical studies conducted around the world.
For More Information on Clinical Trials, visit www.als.org/research/clinical-trials-for-patients