Mobility at Home (2023)
People living with ALS and caregivers shared their experiences with home modifications, exterior ramps, and other equipment that can be used to get into, out of, and around the home.
Insurance and Payment for ALS Care (2022)
People living with ALS and current caregivers shared their recent experiences with health insurance payment for ALS care, including prior authorizations, claims, denials and appeals.
Mobility (2021)
People living with ALS and caregivers reported which mobility equipment was used, how they covered the costs and whether the equipment met their mobility needs.
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Telehealth (2021)
People living with ALS and caregivers reported their experiences with telehealth during the COVID-19 pandemic and their preferences for using telehealth to access ALS care.
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Caregiver Needs (2021)
Current and past ALS caregivers reported which support programs they used, shared their top concerns and evaluated their quality of life.
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What Matters Most (2020)
People living with ALS and caregivers shared their perspectives about the burdens of the disease and which ALS symptoms and functions affected their lives most.
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Understanding Insurance Needs and Financial Burdens (2020)
People living with ALS and caregivers reported their experiences and challenges related to the costs of ALS.
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