ALS Focus Survey Results

Understanding Insurance Needs and Financial Burdens

Participants with ALS ranked the level of stress they felt when confronting various financial issues related to their ALS medical needs and health insurance.

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What Matters Most

People with ALS as well as caregivers are able to provide an assessment of ALS disease burden based on their experiences. The What Matters Most survey demonstrated that the inability to do activities and limitations with mobility or walking mattered most to people with ALS.

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