New ALS Focus Survey is Open: Insurance and Payment for ALS Care
This survey will capture the experiences of people with ALS and their caregivers who have sought health insurance coverage of ALS care, services, treatments, equipment, and supplies. Researching these experiences through ALS Focus surveys shows The ALS Association which tools will best support advocacy for stronger coverage of ALS care.
People with ALS and current caregivers in the United States are invited to participate in this ALS Focus Insurance and Payment for ALS Care Survey.
ALS Focus surveys are open to new and returning participants!
People living with ALS, current caregivers, and past caregivers are eligible to participate in ALS Focus surveys. If you're living with ALS, you may ask someone you trust to respond on your behalf.
Participants must be at least 18 years old and reside in the United States. Survey instructions and questions are presented in English. Surveys are conducted online.
ALS Focus has a new look! Our survey team improved how ALS Focus works so that participating in surveys is easier. Logging into ALS Focus with a password is no longer needed. Instead, we email participants with unique links to their surveys. You will see an email from [email protected]. If you participated in ALS Focus in the past, your responses continue to be de-identified and used in analysis. Responses to past surveys and new surveys are secure and anonymous. If you want to know more, view the ALS Focus Technical FAQ and Registration Instructions. If you have questions, please contact us at [email protected].