Finding ALS Research Opportunities 
Finding ALS Research Opportunities 

Finding ALS Research Opportunities 

When most people think about participating in research, they think about clinical trials, which test the safety and effectiveness of new drugs and treatments. Not everyone is able to participate in clinical trials, but observational and survey studies are also essential for building knowledge that can help make ALS a livable disease. Observational studies give researchers the opportunity to learn about the course of a disease or find new ALS genes or biomarkers.   

Your participation is vital for moving ALS research forward quickly toward new treatments and cures. If you are interested in taking part, we encourage you to talk with your doctor. You can also look for studies recruiting new participants using the instructions below.  

Patient talking with his doctor at an ALS Clinic

Starting Your Search 

We partner with a global health technology company called myTomorrows to provide free personalized clinical trial navigation services. myTomorrows navigators are available to help people living with ALS and their loved ones identify and understand all available clinical trial options and to provide support throughout the enrollment process. If you are interested, you can schedule a call with a patient navigator through the myTomorrows website and receive a personalized overview of trial options to discuss with your doctor.  

Other Resources

There are several other ways you can find research opportunities, whether you are interested in participating or simply would like to get more information:  

The Northeast ALS Consortium (NEALS) provides accurate and up-to-date information about both federally and privately funded ALS clinical trials and observational studies. People with ALS and their caregivers can search the online database or connect with a NEALS ALS trial liaison by calling 855-437-4823 or emailing is the largest database of privately and publicly funded clinical studies being conducted around the world. It is maintained by the National Institutes of Health (NIH) and provides information about both interventional and observational studies for people with ALS, their family members and their caregivers. 

ALS Signal is a search tool developed by I AM ALS that provides information about ongoing and upcoming clinical and observational research. The tool links to the database for more information about each study.  

ALS Trial Navigator is a resource developed by the ALS Therapy Development Institute. Using the Guided Trial Finder tool, you can generate a curated list of ALS clinical trials based on your preferences and eligibility criteria. Alternatively, you can use the Trial Map to view trials based on location or the Trial Browser for a comprehensive list of studies. 

ClinWiki has developed an ALS-specific search tool for both clinical trials and observational studies. You can narrow your search using various categories, such as ALS onset, breathing ability, remote monitoring, etc. 

ALS Focus Survey Program 
ALS Focus is a patient- and caregiver-led survey program that asks people with ALS and current and past caregivers about their needs and burdens. The goal is to learn as much as possible about individual experiences throughout the disease journey.
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Finding ALS Research Opportunities