Enroll in a Clinical Trial
Clinical trials are the most reliable – and ultimately the fastest – way to translate promising laboratory science into new and better ways to treat and care for people living with ALS. During these trials, researchers test whether an experimental treatment is safe and effective within a controlled setting.
Participate in an Observational Study
Observational studies are extremely important for a disease as complex and poorly understood as ALS. The information gathered during these studies helps researchers identify risk factors, better understand the progression of the disease and ultimately find new ways to prevent, diagnose and treat ALS.
Join the National ALS Registry
The National ALS Registry may be the single largest ALS research project ever created. It is designed to determine how many people in the U.S. are living with ALS, who develops the disease and what the possible causes are.
Share Your Experiences and Insights
The ALS Focus survey program asks people living with ALS and current and past caregivers about their preferences, needs and experiences. This data is used to inform strategies that help enhance research, care and advocacy.
