Informational Factsheets
Resources to Help in Living with ALS
Benefits
Caregivers
- Oral Care for People Living with ALS
- For Caregivers - Coping with Burnout
- Family Caregiving-Why Respite?
- Cognitive and Behavioral Changes in ALS: A Guide for People with ALS and their Families
- Caregiver's Bill of Rights
Newly Diagnosed
- Viatical Settlements & Accelerated Insurance Benefits
- The ALS Association's Patient Bill of Rights for People Living With ALS
- Second Opinion FAQs
- Reasons for Living with ALS
- Minimizing Fatigue
- Be a Careful Internet User
- Advance Directives: Make Your Health Care Preferences Known
For People with ALS
- Suspected Abuse
- Respiratory Challenges in ALS - Coughing
- Pain in ALS
- Orthotic Devices
- Mobility and ALS
- Information about Mucus Plugs
- Influenza and ALS
- Emergency Preparedness for People with ALS
- Driving Challenges with ALS
- Dressing with Ease, Style and Comfort
- Breathing Difficulties
- A Guide to Voice Banking Services
- Clinical Trials for ALS
Home Care
- How to Know When to Hire In-home Help
- Home Health Care Glossary
- Medicare and Home Health Care
- Choosing a Home Health Care Agency
- Paying for Home Care
- Different Types of Home Care Workers
- Hiring In-home Help Independently
- Home Adaptations
- Working Successfully with In-home Service Providers
- Planning for the Future
- Respite
- Hospice
- Living with ALS at Home Booklet
- Medicare and Home Health Information
Research
- Nursing Management in ALS
- Glutamate Research Could Lead to ALS Treatment
- Familial Amyotrophic Lateral Sclerosis (FALS) and Genetic Testing
- Epidemiology of ALS and Suspected Clusters
- Criteria For the Diagnosis of ALS
- Brain-Computer Interface (BCI)
- ALS, Cognitive Impairment & Dementia
Speech/Swallowing
- Suggestions and Information about Speech Changes & Augmentative Alternative Communication (AAC)
- Managing Excessive Saliva
- Information About Feeding Tubes
- High Calorie And Easy to Chew Recipes
- Safe Swallowing: What I Need to Know and Why it Matters
- PEGS and nutrition in People with ALS
Alternative Treatments
Veterans with ALS
Information and resources for Veterans and their family
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