Navigating ALS

Life changes after an ALS diagnosis. Being diagnosed with ALS is devastating and overwhelming. Learning to accept your diagnosis and live with the disease can be incredibly difficult.

There is so much to learn and consider – decisions to make, symptoms to manage, treatment options to evaluate and adjustments to almost every detail of your daily routine. It's a great deal to take in, but we want to be with you throughout your ALS journey.

From initial diagnosis to end-of-life plans, we hope the information and resources we provide here will help prepare you.

For Newly Diagnosed

One of the most common questions of those recently diagnosed with ALS and those in their care circles is, “How do I live with this disease?” While there are no easy answers, there are resources available.

We’re dedicated to providing you and your loved ones with the information and support you need to live a fuller life and to better meet the daily challenges of living with ALS.

Read about how best to prepare yourself, your home and your personal care network for the road ahead, keeping in mind that you’re not alone in this journey.

Get Help

Find Resources and Support

Visit

Order Printed Resources

The ALS Association provides a variety of printed materials free of charge to help deal with the impact of ALS.

Learn More

For Military Veterans

For unknown reasons, veterans who have served in the United States Armed Forces are more likely to develop ALS than people who didn’t serve in the military. We’re dedicated to providing resources that will improve the lives of military veterans living with ALS and funding research that will help us understand the link between military service and ALS.

More for Veterans

Living With ALS

While we search aggressively for treatments and a cure for ALS, The ALS Association is committed to helping people battling the disease to live their lives to the fullest.

It’s important to remember that whether you’ve been diagnosed with ALS or are caring for someone with the disease, you don’t have to face it alone. The ALS Association makes it our mission to ensure that you have all the tools and support at your disposal when necessary.

Living with ALS

man in wheelchair receiving care from doctor

For Caregivers

There are great rewards to being a caregiver for your loved one with ALS. But without adequate help and support, the stress of caregiving can leave a caregiver vulnerable to a wide range of physical and emotional difficulties. The ALS Association has numerous resources available for ALS caregivers.

More For Caregivers

Care Connection

ALS Care Connection is a simple online tool that helps organize the community of people who want to help. It coordinates their efforts to more efficiently support families impacted by ALS.

Learn More

My ALS Journey™

ALS follows no predictable path and adheres to no set timeline. Planning ahead helps to alleviate some of the chaos of change, but how do you know what to plan for or what questions to ask? My ALS Journey™ is an interactive, web-based tool that allows people living with ALS to take control of their journey with the disease.

Get Started

Educational Webinars

Learn about a wide range of care topics from our monthly webinars.

Watch Now

Centers & Clinics

The ALS Association collaborates with some of the best ALS physicians and clinics across the United States to help ensure that people living with ALS have access to specialized care, based on best practices.

A young woman in a wheelchair looking at her mobile phone

Support Groups

Support groups are a great resource for people to maintain control over their lives, to give and take the wisdom and experience that comes from living with a devastating illness.

A female researcher taking a sample from a test tube

Clinical Trials

The ALS Association partners with the Northeast ALS Consortium (NEALS) to provide the most accurate and up-to-date resource for information on both federally and privately funded clinical studies focusing on ALS and motor neuron diseases.

Care News

Stay up to date with the latest ALS care news by signing up for our e-newsletter, Care Matters.

Subscribe now