Partnership with leading US-based ALS patient advocacy group furthers myTomorrows’ mission of ensuring that patients confronting life-threatening diseases are aware of all possible treatment options
March 14, 2024 (New York, NY) – myTomorrows today announced a new partnership with the ALS Association, the U.S.-based nonprofit organization fighting ALS on every front. myTomorrows is a global health technology company shaping the future landscape of clinical trial accessibility with a platform that serves patients, physicians, trial sites and BioPharma, connecting each stakeholder at key points in the recruitment funnel in a seamless, supportive experience.
Through the partnership, the ALS Association will tap into myTomorrows’ vast database of ongoing clinical trials and leverage its patient navigation service to ensure that treating physicians and those living with ALS are equipped with up-to-date information about appropriate pre-approval treatment options and ultimately guided towards relevant clinical trials.
ALS (amyotrophic lateral sclerosis) is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord, for which there is currently no cure. Over the course of the disease, people lose the ability to move, to speak, and eventually, to breathe. ALS is usually fatal within five years of diagnosis. Because the disease has such severe day-to-day implications and escalates so rapidly, searching for clinical trials is an especially daunting task. The ALS Association serves more than 20,000 people living with ALS in the United States, and its partnership with myTomorrows aims to make it easier for patients and their families to find and participate in clinical trials.
While there are a number of ongoing clinical trials assessing potential treatments for ALS, pharmaceutical companies face challenges recruiting and enrolling patients, which has long been a major bottleneck slowing down the drug development cycle. myTomorrows’ platform addresses this pain point by connecting pharmaceutical companies with physicians and patients, significantly streamlining the enlistment process. myTomorrows explores each patient’s case individually, helping ALS patients and their loved ones identify and understand all of the available clinical trial options in a well-rounded manner, guided by expert patient navigators who demystify the complexities of clinical trials and support patients and their families throughout the process. This informed perspective and holistic overview makes the recruitment process more efficient for both patients and physicians.
“We look forward to witnessing the impact of our partnership with the ALS Association, one of the most effective and impactful patient advocacy groups in the United States,” said Michel van Harten, CEO of myTomorrows. “ALS is a devastating neuromuscular disease with high unmet needs."
"Partnering with leading patient advocacy groups such as the ALS Association will help an even larger cohort of ALS patients and their treating physicians discover clinical trials, thereby reducing the barriers they may face in accessing their treatment options.”
“Research participation is so impactful to finding treatments and cures as well as reducing the harms of ALS,” said Pam Knott, vice president, data and technology, the ALS Association. “We are very excited about this new partnership as an opportunity to allow more people with ALS to enroll into clinical trials faster while also reducing burden.”
If you're a person living with ALS who would like to book a call with myTomorrows to explore your trial options, go here.