ALS Roundtables Topics
Roundtable meetings address a clearly defined topic that is selected ahead of time by Association staff in collaboration with the Roundtable Advisory Panel. Topics of previous meetings have included:
- Access to essential care, services and supports, as well as to new therapies
- Clinical trial capacity
- Decreasing ALS complications
- Inclusion in ALS diagnosis, care and research
- Reducing time to diagnosis
Turning Discussion into Action
Following the Roundtable community discussions, the Association has convened a number of working groups to delve deeper into specific topics and develop initiatives that benefit the ALS community.
thinkALS tool to support earlier diagnosis
Interactive patient journey web tool
Genetic counseling and testing awareness and education campaign
Patient Advocate Foundation partnership
Advocacy for greater insurance coverage of ALS care
New funding opportunities supporting clinical trial capacity and quality of care research
Enhanced strategic engagement with the FDA
Who to Contact
If you have questions about the Roundtable program, please reach out to Melody Schaeffer at Melody.Schaeffer@als.org. Companies interested in getting involved as partners should contact corporateinfo@als.org.
Thank You to Our Roundtable Sponsors.
We are grateful for the support of our industry partners and for the valuable input and insight they bring to our Roundtable conversations.