Only those living through the experience first-hand truly understand the challenges of being a full-time caregiver, particularly for someone living with ALS. The ability to complete basic daily tasks can be overwhelming and the need for help is great. Finding ways to help and show support for the caregiver in your life can make a huge difference for them, and for you.
The impact of ALS on breathing is likely one of the most daunting aspects of the disease journey and one for which you and your family can and should prepare for early on. There are many different options and interventions to consider, and education and proactive planning can help to ease the stress for everyone involved.
Lamar and Kristina Woody are a lot like any other busy, hard-working couple. They’re juggling careers, education and the day-to-day activities of their sassy and smart nine-year-old daughter, Natalie. Married for over twelve years, they love laughter, music and spending time with family and friends, living their life focused on love, friendship and positivity. They are also living with ALS.
While the travel industry is paying greater attention to the special needs of people with mobility challenges, much more needs to be done to ensure everyone has equal access to safe air travel. The Air Carrier Access Amendments Act is designed to do just that.
The ALS Association recently announced the creation of a new award to honor “superfans,” the most passionate sports and entertainment fans who are also living with ALS. The award is inspired by Stephen Kauffman, who was diagnosed with ALS in 2012, and was honored in 2021 by the Naismith Memorial Basketball Hall of Fame as a Golden State Warriors superfan.
Medicare open enrollment begins this Saturday, the period when individuals may add, drop, or make changes to their health insurance coverage, with selections remaining in effect for the next full year. Understanding exactly what’s available will help you make the critical decisions you need.
We talked with Dr. Stephen Johnson, postdoctoral fellow from Massachusetts General Hospital, to learn more about his research focused on ways to accelerate discovery of efficacious therapeutics through identification and validation of novel outcome measures using readily available technology.
October is National Physical Therapy Month, a time to shine a spotlight on the work physical therapists do and recognize the vital role they play in helping their patients manage challenges with mobility. And for people living with ALS, a physical therapist (PT) is a critical member of the multidisciplinary care team providing the specialized care they need.
We recently talked with Sam Howard, one of the 2022 Jane Calmes ALS Scholarship recipients, to learn more about his personal connection to ALS, what receiving the scholarship means to him, and his future plans in computer science.
The ALS Association spent over $2 million helping fund the development and clinical trial of AMX0035. When the results of that trial showed it was safe and effective in treating ALS, the ALS Association led an advocacy campaign to push the FDA to approve the drug. After two years of advocacy, the FDA finally approved AMX0035.
Most songwriters will tell you, the key to a really good song is the lyrics, a story being told with unique chords and melodies, evoking a specific emotion and compelling listeners to connect and share. No one knows this better than the Swope family, sharing their beautiful memories and storytelling through music, rhythm and song.
We recently talked with Ashley Wong, one of the 2022 scholarship recipients, to learn more about her personal connection to ALS, what receiving the scholarship means to her, and her future plans in healthcare.
As ALS progresses, the challenges of maintaining good nutrition as well as avoiding malnutrition change. With the support of caregivers and a multidisciplinary care team, these challenges can be managed to provide both the best nutrition and best quality of life at all stages.
We recently talked with Liam Rudin, one of the 2022 The Jane Calmes ALS Scholarship recipients, to learn more about his connection to ALS, what receiving the scholarship means to him, and his future plans studying accounting.
Matt Miller might just be the most shameless member of ‘Team Finlay,’ having spent the last 10 years taking outlandish dares from family and friends to raise money for his cousin Jack. From sleeping on roofs to participating in water aerobics dressed like Jane Fonda, there is nothing Matt won’t do to help fight ALS.
We recently talked with Veronica Darland, one of the 2022 Jane Calmes ALS Scholarship recipients, to learn more about her connection to ALS, what receiving the scholarship means to her, and her future plans in journalism.
Jackie could have been the The ALS Association Greater Philadelphia Chapter's volunteer of the month years before her mother's ALS diagnosis. Ironically, in 2013, her dedication to the ALS mission took on an entirely new meaning for her.
We recently talked with Garrett Sakomizu, one of the 2022 recipients of The Jane Calmes ALS Scholarship, to learn a little more about his connection to ALS, what receiving the scholarship means to him, and his future plans in healthcare and ALS research.
We talked with Dr. John Kalambogias, postdoctoral fellow from Columbia University, to learn more about his research focused on dysfunction and degeneration of corticospinal tract neurons in ALS mouse models.