State Profiles

Whether we are talking with lawmakers, care providers, or researchers, it’s important to be able to share what ALS and resources for ALS look like in each state. We hope you find the updated ALS State Profiles helpful as tools you can use to both educate and advocate to make ALS livable for everyone, everywhere, until we find a cure.

Click on any of the states listed below to get a snapshot of key data points about ALS and services we provide across the nation. We are still in a data-gathering phase, so these profiles will continue to evolve and additional state profiles will be added to the list as more information becomes available.

If you have been personally impacted by ALS, you can share your story with us here.

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