Our Public Policy Priorities
All you need to know about our slate of critical federal and state policy issues that we will prioritize, resource, and drive through advocacy to secure the greatest impact for people living with ALS and their families.
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State Advocacy Roadmaps
Our State Roadmaps measure how effectively public policies are serving the ALS community in each state and Washington, D.C.
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Advocacy Toolkit
We’ve created a comprehensive toolkit which includes all the resources you may need to help you plan and lead impactful meetings with your members of congress.
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Advocacy Webinars
Take a deeper dive into the issues with subject matter experts who will help you understand why advocacy is so important and what it means to you and the ALS community.
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Advocacy Media Trainings
This is a four-part media advocacy training that offers strategies and insights on how individuals affected by ALS can effectively engage with the media to amplify their advocacy efforts. Trainings are led by Pulitzer Prize-winning journalist Matt Rocheleau, who is living with ALS.
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Share Your Story
Whether you’re living with ALS or know someone who is, sharing your story can help others in the ALS community and beyond feel connected to the impact ALS has on the people it touches.
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Follow the latest ALS news
From research to critical care to stories from the community, we offer numerous opportunities to stay up to date with all of the latest ALS news. And don’t forget to subscribe to our newest monthly newsletter, Advocacy Matters.
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Printables
- We’ve assembled a series of printable resources you can use to help educate your legislators and people in the community about ALS. Feel free to share the link to these resources, or print them off so you can give out a physical copy. Download your favorites and start sharing TODAY!
- 8 Ways to Get involved
- What is ALS Infographic
- ALS Federal Research Funding One Pager
- State Advocacy Roadmaps
