ALS, also known as Lou Gehrig’s Disease, is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. The disease robs people of the ability to walk, talk and even blink an eye. It traps them inside a body they no longer can control and ultimately prevents them from breathing as it takes their life. People with ALS lose the power to use their legs, hold someone close, and say, “I love you,” before their bodies gradually shut down. . From onset to diagnosis, life expectancy is 2 – 5 years.
Walk Your Way gives you control of what Walk Day looks like. Take a walk or ride around your neighborhood, nearby park, or living room. Bring your team together in a way that works for you, take photos, spread the word, and make new memories.
All Together Now: Perspectives on Organizing Your Medical Care and Maximizing Your Team’s Effectiveness
This session will feature a panel of people living with ALS, Caregivers, and Clinic Professionals and allow time for Q and A from the audience. Tools such as the Critical Medical Information app and other strategies will be discussed.
This year the ALABAMA Statewide Walk to Defeat ALS will be Virtual or a Walk where you are event, but you will register your team for the area closest to where you live:
Join Chuck Smith as he rides 1,200 miles over 7 days and raises funds in honor of Gary Godfrey and those affected by ALS. Chuck will be participating in Ragbri at the end of July. Let's unite and support Chuck, Gary, Carol, and all others on this journey.