Join Chuck Smith as he rides 1,200 miles over 7 days and raises funds in honor of Gary Godfrey and those affected by ALS. Chuck will be participating in Ragbri at the end of July. Let's unite and support Chuck, Gary, Carol, and all others on this journey.
A few words from Gary Godfrey:
"ALS is a devastating disease that I have experienced firsthand of what it can do to your body. In less than two years I went from riding a bike, golfing, playing basketball, water skiing, and other activities to being unable to walk or use my arms, unable to speak or breathe without assistance. In fact, I am using my eyes to type this email to you.
One would think losing the ability to walk, talk, eat, and inability to use arms and hands would be the hardest part of this journey. For me, it was not the case. The hardest part is losing my independence and becoming 100% dependent on others for every part of daily living. Learning to accept help from others and ask for help.
My life has been blessed with incredible experiences, many with family and friends. Because of this, I don’t miss what I am not able to do anymore. I tend to focus on what I can do. I do miss simple things like walking the dog or hugging Carol or holding hands.
This journey has brought new, enriching experiences that we never would have experienced. The journey has been challenging but fulfilling. I am not trying to fight ALS. I am not in a battle nor am I angry with ALS. I choose to live with ALS. I have a lot to live for and that keeps me going in a positive manner.
I know that God has a plan for me. I believe there is a purpose that God wants me to serve. I believe the purpose is to share how important today is and trying to make a difference in this world we live in.
When you are facing a terminal disease there comes a clarity on how important each day is. You cannot change yesterday, and tomorrow is not guaranteed. So each day is a blessing. I did not understand that when I was caught up in daily activities. I have realized how much joy there is having a positive impact on someone or something each day. Therefore, I try to make each day my best day yet. My best days are when I can make a difference in someone’s life. As I said earlier, I believe that is the purpose God wants me to serve. I want to share “Make Today Your Best Day” to everyone I can reach.
ALS research has been historically underfunded. I am trying to change that. In the last 10 years, we have spent nearly $1B on ALS research. By comparison, Cancer has spent over $100 billion on research. They continue to discover new treatments that are saving lives. ALS needs to be spending over $1B per year on ALS research. To do that, I am trying to bring a new focus on the need for more investment."