Camp HLC is typically a three-day, overnight retreat for children and young adults, ages 6-21, who have or have had a loved one battling ALS. Families are invited as well. It is an opportunity to have fun, be challenged through team building exercises, and meet peers who are going through a similar experience.
Camp HLC is provided free for our ALS families by Hope Loves Company and our sponsors. All meals and activities are included.
ALS, also known as Lou Gehrig’s Disease, is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. The disease robs people of the ability to walk, talk and even blink an eye. It traps them inside a body they no longer can control and ultimately prevents them from breathing as it takes their life. People with ALS lose the power to use their legs, hold someone close, and say, “I love you,” before their bodies gradually shut down. . From onset to diagnosis, life expectancy is 2 – 5 years.
We're excited to once again offer our Virtual ALS Symposium this year! Mark your calendars for December 14th and join us to learn more about research updates, advocacy efforts in research and expanded access, and more! Our special guest lineup includes:
Dr. James Berry, MD, MPH
The Healy Center for ALS, MGH 2021 Research Updates & Highlights
Dr. Jinsy Andrews MD, MSc
Eleanor & Lou Gehrig ALS Center, Columbia University Advocacy & Expanded Access to Investigational Drugs