Blog

630 results
ALS Association
Celebrating International Day of Women and Girls in Science
This week the world turned their focus to the celebration of women and girls in science, shining a light on the tremendous gender gap that still exists in the world of science. We asked Jill Yersak, Ph.D., Vice President of Mission Strategy at The ALS Association about her personal experience growing up in the STEM field.
Blog
ALS Association
Feeding Tube Awareness Week Q&A
This week, The ALS Association commemorates Feeding Tube Awareness Week, an opportunity to recognize the important role that feeding tubes can play in the lives of people with ALS.
Blog
Florida Chapter
Don and Alice Worden - Love in Deed and Truth
Don and Alice Worden have been married for 42 years. Don is living with ALS, but the couple live their lives to the fullest and enjoy the little things that bring constant love. This is the perfect Valentine's Day love story. <3
Blog
ALS Association
COVID Webinar Updates Community on Vaccine Access
The ALS Association recently hosted an COVID-19 update webinar for the ALS community, with panelists Dr. Lou Libby, Dr. Richard Bedlack, Dr. Cherise Rohr-Allegrini, Dr. Urvi Desai and Dr. Marinella Galea, moderated by ALS Association Board of Trustees member Dr. Ken Menkhaus, addressing issues specific to the concerns and interests of the ALS community.
Blog
ALS Association
One Man’s Story About Why He Joined the Fight Against ALS
Through word of mouth, Stuart and his wife Marcia found five or six families in their community who were also dealing with the impact of an ALS diagnosis. They started an informal support group. The group started working with the chapter relations team at The ALS Association and formed The ALS Association Alabama Chapter.
Blog
Massachusetts Chapter
ASICS Falmouth Road Race Q&A - Team Challenge ALS 2021
The ALS Association Massachusetts Chapter is thrilled to enter the 2021 ASICS Falmouth Road Race with an inaugural team of 15 runners. Learn more about this year's application process, challenge requirements, and other relevant information with this question and answer article.
Blog
ALS Association
New Biomarker Initiative Shows Continued Success of Research Program
Research supported by The ALS Association, through a $1.4 million grant, has grown into a $15 million program to identify biomarkers – things in the body like heart rate or fluid levels that can be measured in order to diagnose and track progression of a disease. Currently there are no biomarkers for ALS, making it a critical, unmet need in the field.
Blog
Massachusetts Chapter
From the Desk of the Executive Director: January 2021
John Hedstrom, Executive Director of The ALS Association Massachusetts Chapter, greets the Massachusetts ALS community with a Happy New Year and robust plans for the Chapter at the start of 2021.
Blog
ALS Association
Going the Extra Mile to Fight ALS
After watching his Aunt Christie battle ALS for more than nine years, twenty-one-year-old Ryan Wilson was determined to find a way to honor her fight and make a difference for the ALS community. So, he decided to ride his bike from Poughkeepsie, NY to Miami, FL to help raise awareness and funds for ALS research.
Blog
ALS Association
The Michelsen Family and Living with ALS
Six months after their wedding, Jonathan began noticing unusual weakness in his right hand which persisted, and then seemed to inexplicably spread into his right leg. Because of his medical education, he suspected ALS.
Blog
ALS Association
Biogen Shares Latest Updates on ALS Clinical Trials
Despite the many challenges caused by COVID-19 this past year, ALS research made strides toward finding effective treatments for ALS. As 2020 winds down, we wanted to share an update from our partners at Biogen on some of their ongoing research projects.
Blog
ALS Association
The Stevens: One Family’s Journey Living With ALS
We recently spoke with George Stevens – husband, father, grandfather, and a person living with ALS. George and his family live in Maine and have been very involved with The ALS Association Northern New England Chapter. Here is what George had to say about his journey with ALS in his own words.
Blog