Quality Local Care Critical for the ALS Community

Clinician and patient

The ALS Association is committed to making ALS livable for everyone, everywhere, until we find a cure. The Association’s local care teams and teams of health care professionals across the country work each day with one thing in mind—enhancing quality of life for people with ALS and supporting families impacted by the disease.

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Multidisciplinary-Clinic-Team

For people with ALS, multidisciplinary care has been shown to extend survival and improve life quality. Across the country, our Certified Treatment Centers of Excellence and Recognized Treatment Centers provide more than 12,000 people with ALS compassionate care in a supportive, family-oriented atmosphere. We are committed to expanding this network insuring people with ALS, regardless of where they live, have access to this type of critical care. Our clinic locator map was developed to help families easily find the nearest ALS clinic based on a location or address.

Staffed by the best ALS physicians and healthcare professionals, these clinics have multidisciplinary care teams who help facilitate shared decision-making and the continuum of care needed at every point in the ALS journey. Last year we provided $4.8 million in grants to support our certified center program, and we are utilizing the latest technology and leveraging the knowledge of the ALS community to ensure those in need of support can find and access the care centers that best meet their needs.

Last year, our local care services teams served nearly 22,000 people with ALS including more than 2,000 military veterans. These teams are experts in the community, helping to provide education, support and resources for people with ALS and their families. From helping navigate the healthcare system to providing access to needed durable medical equipment to working with families to find creative ways to adapt their home environment, the many services they provide are always available free of charge.

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Virtual-Support-Group

Although each person's ALS journey is unique, there is much that can be learned from others who are also facing the disease. Attended by nearly 30,000 people, Association support groups offer comfort and connection for both people with ALS and their caregivers and families. Whether it be in a face-to-face setting or through an online connection, these groups provide an opportunity for people to share personal experiences and feelings, coping strategies, and firsthand information about living with ALS.

We are committed to doing whatever it takes to make sure every person living with ALS, regardless of where they live, has access to high-quality care and effective treatments. While we continue to make progress toward building a world without ALS, we can ensure that no one has to face this disease alone.

Learn more about ALS and how you can get involved to help people impacted by the disease.

Stay up to date on the latest information about ALS care, disease management and resources to by subscribing to our quarterly e-newsletter, Care Matters.

To continue to follow stories about people living with ALS in the community and learn more about the disease, subscribe to receive our weekly blogs in your inbox HERE or follow us at als.org/blog.

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Comments

Submitted by: Iris J. on Tue, 05/23/2023

How do people with ALS afford an aide to come in a few hours a week to provide help. I have called dozens and dozens of Home Care companies and they all have the same requirements. 12 hrs a week at $30-$37 an hour, Or between $ 1400 and $1600 a month medicaid May pay some but what happens when you make two much for Medicaid and not enough to be comfortable with an additions $ 1600 a month NY dept of aging has a program that helps financially but there is a 6 month to one year waiting list

Submitted by: Amy L. on Tue, 05/30/2023

Hi Iris. So sorry you are facing this. Your local ALS Association care team may be able to help you get respite care or point you to grants you are eligible to help pay for care. You can find their contact information at als.org/local-team.

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