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The Physical Therapist: Helping You Keep Your World Large
October is National Physical Therapy Month, the perfect time to explore the work physical therapists do and recognize the vital role they play in helping people with ALS manage challenges as a critical member of the multidisciplinary care team.
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Dancing with ALS: Breanna’s Story
Casey and his sister Breanna started ballet dancing when they were young, and both pursued dancing professionally, at least for a while. But when Breanna learned she had ALS they decided they needed one last dance, together.
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Combating Malnutrition for People with ALS: It Takes a Team
Nutrition is not just important, but essential for every living being. This Malnutrition Awareness Week, we wanted to take a look at the nutritional challenges faced by people living with ALS and how, working together, we can combat them.
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Five Outstanding Postdocs Named 2024 Safenowitz Fellows
Five talented young scientists dedicated to advancing our understanding of ALS and the search for new treatments have been selected as our 2024 Milton Safenowitz Postdoctoral Fellows. Learn more about them and their promising research.
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Researcher Spotlight: Dr. Sitao Zhang, Milton Safenowitz Postdoctoral Fellow
When it comes to finding new treatments and cures for ALS, it’s not just a professional goal for Milton Safenowitz Postdoctoral Fellow Dr. Zhang—it’s also a deeply personal one. Learn more about how he is dedicating his career to learning more about what causes ALS so he can help develop better treatments for the disease.
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Lamar and Kristina Woody: ALS Heroes
The Woody’s already had enough on their plate juggling all the challenges life brings while living with ALS. But when we asked if we could share their story to help raise awareness and funds to help fight the disease, they decided they could help. And by sharing their story with us they showed us why it is so vital to make ALS livable for everyone, everywhere, until we can cure it.
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The Power of Pets
Animal lovers everywhere understand that having pets can help decrease stress and improve our emotional and physical well-being. For people living with ALS, the unconditional love of a pet can provide some comfort and companionship on their journey.
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Brooke Eby: An ALS Hero
Each year, the Hero Awards recognize special people in the ALS community who have made a significant impact for those living with the disease. People like Brooke Eby, whose approach to just about everything is to joke about it, even living with ALS. Find out how her sense of the absurd and positive outlook on life has helped raise awareness about the disease.
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Living with ALS and Resilience
Finding a way to be resilient in the face of challenges can be difficult. But for people living with ALS, their families and caregivers, resilience can be very beneficial to their overall wellness and emotional health. Discover how resiliency can be a learned skill and steps you can take to be more resilient.
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Katie Adams: An ALS Hero
Each year, the Hero Awards recognize special people in the ALS community who have made a significant impact for those living with the disease. People like Katie Adams, who knew she wanted to do something to help others with ALS but wasn’t sure how, until it just “landed in my lap.”
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From Safenowitz Fellow to Pioneering ALS Researcher: Dr. Clotilde Lagier-Tourenne
In honor of the 20th year of our Milton Safenowitz Postdoctoral Fellowship Program, we are catching up with some of our funded fellows, like Clotilde Lagier-Tourenne, M.D., Ph.D., an associate professor of neurology at Massachusetts General Hospital and Harvard Medical School, to find out how the award impacted her research and career.
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Creative Pursuits Program Now Available to Everyone, Everywhere
Our nationwide Creative Pursuits Program can help participants emotional well-being by enhancing self-confidence, easing anxiety, and experiencing the joy of self-expression. It provides an opportunity for enhanced social interaction and connections with new people for individuals living with ALS and their caregivers.
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Ron Faretra: An ALS Hero
Each year, the Hero Awards recognize special individuals in the ALS community who have made a significant impact for those living with the disease. Individuals like Ron, who found a new focus for his life-long service to others after being diagnosed with ALS.
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Movement Matters: Crafting an Exercise Plan that Works for You
Exercise and movement can be a vital part of a wellness routine, the benefits of which have been proven to be beneficial not only for physical health, but also for mental health. This can be true for people living with ALS as well. Learn how you can craft exercise routine that is safe and makes sense for you.
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Can Genetics Help Explain Rare ALS Reversals?
ALS reversals, where someone with a confirmed ALS diagnosis recovers significant lost motor function, are rare. Could genetics play a role? Learn more about a new discovery and what it could mean for the ALS community.
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Taking Action this Month: Advocating for the ALS Community
August is Advocacy Action Month for ALS advocates—an opportunity to push for changes in policies that affect the lives of people living with ALS, and we want you to join us! Learn some quick ways you can get involved and help make real change for the ALS community.
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Olympic Medalist Uses Hall of Fame Induction to Raise Awareness of ALS
Olympic medalist Ron Joseph waited a long time to be inducted into the U.S. Figure Skating Hall of Fame, but he was unable to attend the ceremony in-person after being diagnosed with ALS. But he didn’t want to miss the opportunity raise awareness about the disease for the ALS community.
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