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Massachusetts Chapter
Petrovsky Poetry: December Feature
Debbie Petrovsky, a woman with ALS residing in Massachusetts, pens poetry to articulate her experience living with the disease. Her unique expression is unique to her experience yet offers insight for those looking to learn more about the challenges of ALS.
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Massachusetts Chapter
Massachusetts ALS Advocacy: Testimony by John Hedstrom, Executive Director
Executive Director John Hedstrom of The ALS Association Massachusetts Chapter offers a testimony to the Join Committee on Health Care Financing in support of in Support of H. 201 and S. 753, “An Act Advancing Health Care Research and Decision-Making Centered on Patients and People with Disabilities”. Read his statement on behalf of the Massachusetts ALS community here.
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Massachusetts Chapter
Petrovsky Poetry: November Feature
Debbie Petrovsky, a woman with ALS residing in Massachusetts, pens poetry to articulate her experience living with the disease. Her unique expression is unique to her experience yet offers insight for those looking to learn more about the challenges of ALS.
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Massachusetts Chapter
Petrovsky Poetry: September Double Feature
Debbie Petrovsky, a woman with ALS residing in Massachusetts, pens poetry to articulate her experience living with the disease. Her unique expression is unique to her experience yet offers insight for those looking to learn more about the challenges of ALS.
Blog
ALS Association
Spread the Word: It’s Global ALS/MND Awareness Day
Every year on June 21 the International Alliance of ALS/MND Associations celebrates Global ALS Awareness Day, a day of recognition of ALS/MND – a disease that affects people in every country around the globe.

ALS is not unique to the US, it’s a global problem. It does not discriminate based on race, ethnicity, socioeconomic status, or region. People are living with the disease all over the world, and for every person diagnosed, the impact of the disease will forever be felt by their loved ones.
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Northern Ohio Chapter
How Does ALS Affect My Life?
This is a personal statement read by Jennifer Bernay on the 2021 virtual hill day held with the ALS Association Northern Ohio Chapter and members of congress representing the state of Ohio.
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ALS Association
Lou Gehrig Day: An Amazing Day of Awareness for the ALS Community
This week marked a historical moment in the fight against ALS with the official launch of Lou Gehrig Day, now an annual event across Major League Baseball to help spread awareness and raise funds for people living with ALS and their families.
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Massachusetts Chapter
Petrovsky Poetry: Two Block Walk
Debbie Petrovsky, a woman with ALS residing in Massachusetts, pens poetry to articulate her experience living with the disease. Her unique expression is unique to her experience yet offers insight for those looking to learn more about the challenges of ALS.
Blog
ALS Association
Warm Summer Night, a Moment the Vickers Family will Never Forget
Many believe that all it takes is one song to bring back 1,000 memories, moments we hold dear and relive in our minds every time we listen to it. No one knows this better than the Vickers family, sharing their beautiful memories and storytelling through music, rhythm and melody.
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ALS Association
ALS Youth Action Day Celebrates its Third Year
To help empower kids in the fight against ALS, The ALS Association is celebrating the third annual ALS Youth Action Day on Saturday, May 15. It’s a day where kids across the country can take the ALS Youth Challenge and use the power of their creativity to help raise awareness and critical funds that help researchers around the world look for treatments and a cure while enabling people with ALS to live longer, higher quality lives.
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ALS Association
My Mother, the Heartbeat of Our Family
Susan Seabrook is a wife, a mom, a sister, and a caregiver for her mother living with ALS. In honor of her mother on this Mother’s Day, she is sharing her family’s personal story, their journey with ALS and many of the moments she cherishes most.
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ALS Association
Going the Extra Mile to Fight ALS
After watching his Aunt Christie battle ALS for more than nine years, twenty-one-year-old Ryan Wilson was determined to find a way to honor her fight and make a difference for the ALS community. So, he decided to ride his bike from Poughkeepsie, NY to Miami, FL to help raise awareness and funds for ALS research.
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ALS Association
My Family’s Journey with ALS
Our family’s journey with ALS was no doubt the saddest and hardest thing we ever encountered. But we managed to stay strong through it, and the entire experience brought us all even closer together. In the end, it became the most special and magical journey our family ever had together.
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