Blog

Wisconsin Chapter
My Name is John Mankowski and I Have ALS
My name is John Mankowski and I have ALS. I am sharing my story to tell you why I Walk to Defeat ALS, and the direct impact you have when you walk too.
Blog
Wisconsin Chapter
Finding Her Story: Erin Vierstra
Erin Vierstra found the group Her ALS Story while scrolling on Instagram a little over a year ago. Erin's story is one with a long family history, and being a part of this group of women has given her a support, space to be, a platform and inspiration to keep a good thing going and growing.
Blog
Wisconsin Chapter
Caregivers are Your Lifeline
Maureen Stemmelen was diagnosed with ALS in 2016. She has always been known as "the Gatherer", bringing friends, family and community in with open arms and an open heart. Her ALS journey has only served to affirm this, and she encourages everyone to lean in, let your friends, family and neighbors surround you - caregivers are your lifeline.
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ALS Association
Jake Obid: Fighting ALS 26 Miles at a Time
Jake met Bill Wechsler during his freshman year in high school in Holliston, MA. Challenged with academic and mental health issues at the time, Jake was referred to Bill who was the school social worker for counseling and support. By the spring of his junior year, Jake had made so much progress he no longer needed the formal counseling he had become accustomed to, but he still frequently visited Bill to spend time talking with him. It was around that same time that Bill was diagnosed with ALS.
Blog
ALS Association
Celebrating Global ALS Awareness Day 2022
June 21 is a solstice, a turning point, if you will, and each year the ALS/MND community around the world celebrates Global ALS/MND Awareness Day to express their hope that this day will be yet another turning point in the search for causes, treatments and ultimately a cure of ALS/MND.
Blog
ALS Association
Celebrating Lou Gehrig Day 2022
Today, in Major League ballparks across the country, fans will take part in the celebration of the second annual Lou Gehrig Day, an event to help spread awareness and raise funds for people living with ALS and their families. And no baseball fan is more excited than Larry Falivena.
Blog
Florida Chapter
Stomp Out ALS - A Derby Day Event
Stomp Out ALS is a third-party fundraiser hosted by Brandi Hyatt in memory of her father Jack who passed away in 2017. The event is centered around the Kentucky Derby - getting dressed up, wearing big hats, eating delicious Southern-themed food and baked goods, picking horses and other Derby-related activities.
Blog
ALS Association
True Awareness
Diagnosed with ALS last spring, Heidi Tarr Henson, Ed.D., shares thoughts about her personal journey living with the disease and what real awareness of ALS means to her.
Blog
ALS Association
Ken Paves: My Mother Was My Everything
In celebration of mothers everywhere today, we are honored to share the story of celebrity hairdresser and beauty expert, Ken Paves, and his amazing story about life, love and caring for his beautiful mother, Helen, who recently lost her battle with ALS.
Blog
Wisconsin Chapter
My name is Peggy Jennerman and my husband, Dave, has ALS
When Peggy Jennerman's husband was diagnosed with ALS, it was not something either of them expected to hear.
As Dave's symptoms progressed Peggy reached out to the ALS Association Wisconsin Chapter and share her experience in her own words.
Blog
ALS Association
ALS Awareness Month Starts Today: How You Can Help Join the Fight
May is ALS Awareness Month, an opportunity for the ALS community to work together to help educate people about this devastating disease and shine a spotlight on the impact ALS has on the families it touches. To kick off the month of May, we’re highlighting eight easy ways you can help raise awareness this month and beyond.
Blog
Northern Ohio Chapter
The Jane Calmes ALS Scholarship Fund Kicks Off Year Four
The Jane Calmes ALS Scholarship Fund is now accepting applications for the 2022-2023 school year! This fund will provide a $5,000 scholarship to students seeking a college degree or vocational certificate who have been financially burdened by an ALS diagnosis. The deadline to apply is May 18, 2022.
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Wisconsin Chapter
My Dad the Super Doc: Joe Kelley
Super Doc Joe Kelley was a veterinarian near Madison, WI. He left a legacy of love, laughs, and generosity.
Brenna Kelley, daughter of Super Doc Joe Kelley, shares with us Dr. Joe's story and the children's book that was written about him.
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Florida Chapter
Concrete Cowboy Rides for ALS
Gene Nifenecker rode Cash the bull in the Cracker Day Rodeo to raise money for ALS and make his wife, who is living with the disease, smile.
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Florida Chapter
Loving Between the Divide
Despite divorce amidst the ALS diagnosis, Gladys and Hector Villalobos remain friends and proud grandparents. Their hearts remain full of love for their family.
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