Blog

525 results
ALS Association
We Must Fight to Ensure Telehealth Changes Become Permanent Part of Health Care
Increased access to telehealth has long been a priority for The ALS Association and its advocates, as many people living with the disease have difficulty traveling to multidisciplinary clinics. In fact, many of the policy changes the Association pursued long before the pandemic have been enacted in response to the COVID-19 public health crisis. It is now critical that we fight to make those changes permanent.
Blog
ALS Association
Researcher Spotlight: Emily Thompson, Ph.D.
We recently talked with Dr. Emily Thompson from the Rothstein Lab at Johns Hopkins University to learn about her unique research project focused on how the loss of a cortical astroglia subpopulation exacerbates dendritic and synaptic defects of upper motor neurons in ALS.
Blog
ALS Association
Researcher Spotlight: Valeria Gerbino, Ph.D.
We recently talked with Dr. Gerbino from the Maniatis Lab at Columbia University to learn about her unique research project focused on identifying how mutations in TBK1, one of the genes associated with ALS, differentially affect the cells of the spinal cord involved in the pathogenesis of ALS.
Blog
ALS Association
Researcher Spotlight: Paul McKeever, Ph.D.
We recently spoke with Dr. Paul McKeever from the Rogaeva lab at the Tanz Centre for Research in Neurodegenerative Diseases at the University of Toronto. Paul’s current research project is focused on uncovering the molecular programming which make individual brain cells and populations of cells susceptible or resilient to the disease process so that new therapeutic avenues can be developed for patients with ALS and FTD.
Blog
ALS Association
Researcher Spotlight: Lauren Laboissonniere, Ph.D.
We recently talked with Dr. Lauren Laboissonniere from the Ranum lab at the University of Florida to learn about her unique research project focused on the development of novel therapeutics for the treatment of C9orf72 ALS/FTD and related repeat-associated disorders.
Blog
ALS Association
Biogen Announces Latest Updates on ALS Clinical Trials During the Pandemic
Biogen, a partner of The ALS Association, recently published promising results from its phase 1–2 Trial of Antisense Oligonucleotide Tofersen for SOD1 ALS and is now actively enrolling participants for their Phase 3 Valor study. It also announced that there is an open-label extension available in the study.
Blog
ALS Association
6th Anniversary of the First ALS Ice Bucket Challenge
Today marks the 6th anniversary of the very first ALS Ice Bucket Challenge, where people around the world came together to raise awareness and funds to end ALS. Since then, thanks to the overwhelming kindness and generosity of our supporters, The ALS Association has been able to commit $111,449,730.53 to research that's led to amazing discoveries, bringing us ever closer to treatments and a cure for this devastating and always fatal disease.
Blog
ALS Association
Researcher Spotlight: Zhe Zhang, Ph.D.
We recently talked with Dr. Zhe Zhang from the Sun Lab at the Johns Hopkins School of Medicine to learn about her unique research project focused on screening for expansion in the C9ORF72 gene, the most common genetic cause of ALS.
Blog
ALS Association
ALS Caregiver Education Expands with Virtual Instruction
Social distancing measures put in place in response to the COVID-19 pandemic created a unique dilemma for chapter staff who teach caregivers how to use critical assistive living devices that enhance the quality of life for their loved ones living with ALS.
Blog
ALS Association
ALS Association Funded Research Finds Path Forward in Search for Biomarkers
Research supported by The ALS Association found that blood plasma analysis could be key to speeding up the process of diagnosing the disease and monitoring disease progression. The research was led by Dr. Michael Bereman from North Carolina State University and supported by a $100,000 grant from The ALS Association, including funding from the North Carolina Chapter.
Blog
ALS Association
Smart Home Technology and ALS
For people living with ALS, reduced physical mobility and the ability to communicate often cause “Smart” homes – in which household items become connected and are controllable with the use of technology – can greatly improve accessibility and be life-changing for people living with the disease.
Blog
ALS Association
How to Avoid Misleading Claims About Off-Label Prescription Drug Use
ALSUntangled, an award-winning website dedicated to helping people with ALS figure out whether alternative and off-label treatments are effective and appropriate, has created a list of 10 red flags people with ALS should be aware of when considering off-label treatments they read about on the Internet.
Blog
ALS Association
Biographer Reflects on Lou Gehrig's Legacy
In his farewell speech at Yankee Stadium on July 4, 1939, Gehrig called himself the luckiest man on the face of the earth. He wasn’t thinking of himself, though. He was thanking those who had helped him in life. He was helping his family, his friends, and his fans get through the ordeal of his illness.
Blog
ALS Association
ALS Association Commends NIH for New Funding Commitment of $25 Million for ALS Research
The National Institutes of Health on Wednesday announced plans to spend an additional $25 million to create a new program that will speed up ALS research and support cutting-edge approaches to understanding the disease and developing treatments. The money is scheduled to be spent over five years targeting innovative research through a program called Accelerating Leading-edge Science in ALS – or ALS2.
Blog
ALS Association
A Statement on Systemic Racism from The ALS Association
We believe that systemic racism has a direct effect on the lives of many within the ALS community. We can and must do more to erase the disparities that exist for people with ALS of different races, ethnicities, and socio-economic circumstances.
Blog
ALS Association
ALS Warrior, Nanci Ryder, Passes Away at Age 67
The ALS Association joins the ALS community in mourning the loss of the legendary Hollywood publicist, Nanci Ryder. Nanci was diagnosed with ALS in 2014 and worked tirelessly through her journey spreading awareness of the disease and raising necessary funds for patient care and research.
Blog
ALS Association
How Access to Telehealth is Changing
A major benefit of providing long term telehealth care options to people with ALS is the decreased risk of exposure to other illnesses, in particular during this time of COVID19.
Blog
ALS Association
Partnership among The ALS Association, I AM ALS and BrainStorm Cell Therapeutics Promises Insights into ALS Biomarkers and Effectiveness of NurOwn
The ALS Association and I AM ALS have awarded a $500,000 grant to BrainStorm Cell Therapeutics, a biotechnology company, to support its ALS biomarker research study.

The lack of defined biomarkers for ALS has been a significant challenge to clinicians and researchers who are keen to identify disease risk and onset much earlier and also, to verify the effects of treatments in clinical trials. The funding partnership among The Association, I AM ALS and BrainStorm will draw insights from data and samples collected from patients enrolled in BrainStorm’s ongoing phase 3 clinical trial of its NurOwn treatment to see if the therapy is hitting its targets in the nervous system and generating measurable changes in biomarkers that would signal that the drug works.
Blog