ALS Association Time to Diagnosis Working Group Members

Thank you to our working group members for their time and talent to develop the thinkALS early diagnosis tool and the consensus statement on benefits of early diagnosis. 

The Time to Diagnosis Working Group Members are: 

  • Suma Babu, M.D., MPH, MBBS, Assistant Professor of Neurology at Harvard Medical Center – thinkALS tool development team 
  • Scott Baver, Senior Director of Medical Affairs at Apellis Pharmaceuticals 
  • Nancy Bayerlein, Director of Patient Advocacy at Mitsubishi Tanabe Pharma America 
  • Sellam Birhane, Manager of Mission Programs, The ALS Association 
  • Karen Doss Bowman, ALS Focus Patient and Caregiver Advisory Committee Member 
  • Cathy Cummings, CAE, MBA, Executive Director, The International Alliance of ALS/MND Associations 
  • Courtney Cupples, Senior Vice President of Commercial Strategy and Marketing at Biohaven Pharmaceuticals 
  • Austen Eadie-Friedmann, Director of Patient and Employee Experience at Alexion Pharmaceuticals 
  • Terry Heiman-Patterson, M.D., Professor of Neurology at the Lewis Katz School of Medicine at Temple University – thinkALS development team 
  • Shauna Horvath, Head of Global Marketing at Amylyx Pharmaceuticals 
  • Cathy Lomen-Hoerth, M.D., Ph.D., Professor of Neurology at University of California San Francisco Weill Institute for Neurosciences - thinkALS development team 
  • Carianne Meystrik, ALS Focus Patient and Caregiver Advisory Committee Member 
  • Bjorn Oskarsson, M.D., Associate Professor of Neurology at the Mayo Clinic Jacksonville – thinkALS development team 
  • Wendy Selig, Founder and CEO, WSCollaborative 
  • Regan Sherman, Head of Patient Advocacy Relations at Orphazyme 
  • Neil Thakur, Ph.D., Chief Mission Officer, The ALS Association 
  • Andrew Wolff, Senior Vice President, Senior Fellow, Clinical Research and Development at Cytokinetics 
  • Jill Yersak, Ph.D., Vice President of Mission Strategy, The ALS Association 

We acknowledge the support and feedback from people with ALS and caregivers, colleagues at the Northeast ALS Consortium (NEALS), the American Academy of Neurology (AAN), American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM), the Motor Neurone Disease Association (MNDA), the Motor Neurone Disease Association Australia, and the International Alliance of ALS/MND Associations.

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