ALS Association Time to Diagnosis Working Group Members

Thank you to the members of the Time to Diagnosis Working Group (2020-2021) for volunteering their time and expertise to develop the thinkALS early diagnosis tool and the consensus statement on the benefits of early diagnosis. 

  • Suma Babu, M.D., MPH, MBBS, Assistant Professor of Neurology, Harvard Medical Center*
  • Scott Baver, Senior Director of Medical Affairs, Apellis Pharmaceuticals 
  • Nancy Bayerlein, Director of Patient Advocacy, Mitsubishi Tanabe Pharma America 
  • Sellam Birhane, Manager of Mission Programs, The ALS Association 
  • Karen Doss Bowman, Member, ALS Focus Patient and Caregiver Advisory Committee
  • Cathy Cummings, CAE, MBA, Executive Director, The International Alliance of ALS/MND Associations 
  • Courtney Cupples, Senior Vice President of Commercial Strategy and Marketing, Biohaven Pharmaceuticals 
  • Austen Eadie-Friedmann, Director of Patient and Employee Experience, Alexion Pharmaceuticals 
  • Terry Heiman-Patterson, M.D., Professor of Neurology, Lewis Katz School of Medicine at Temple University*
  • Shauna Horvath, Head of Global Marketing, Amylyx Pharmaceuticals 
  • Cathy Lomen-Hoerth, M.D., Ph.D., Professor of Neurology, University of California San Francisco Weill Institute for Neurosciences*
  • Carianne Meystrik, Member, ALS Focus Patient and Caregiver Advisory Committee 
  • Bjorn Oskarsson, M.D., Associate Professor of Neurology, Mayo Clinic Jacksonville*
  • Wendy Selig, Founder and CEO, WSCollaborative 
  • Regan Sherman, Head of Patient Advocacy Relations, Orphazyme 
  • Neil Thakur, Ph.D., Chief Mission Officer, The ALS Association 
  • Andrew Wolff, Senior Vice President, Senior Fellow, Clinical Research and Development, Cytokinetics 
  • Jill Yersak, Ph.D., Vice President of Mission Strategy, The ALS Association 

* Member of the thinkALS development team 

We also appreciate the support and feedback provided by people living with ALS and caregivers as well as colleagues at the Northeast ALS Consortium (NEALS), the American Academy of Neurology (AAN), American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM), the Motor Neurone Disease Association (MNDA), the Motor Neurone Disease Association Australia and the International Alliance of ALS/MND Associations.

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