During an observational study, researchers might follow a group of people living with ALS over time to see how their disease progresses or use a wide range of samples and clinical information to investigate genetic causes of ALS or potential biomarkers. Observational studies can also be used to explore the role of environmental factors, such as toxins, in ALS development.
When you’re providing around-the-clock care for a person with ALS, stress and burnout are to be expected. When added to the stress of everyday life, work, and family, caregiving can be overwhelming. Luckily, there are a number of strategies and techniques that you can use to help manage your stress and communicate your needs. Not to mention, we can help connect you with a supportive community of ALS caregivers and patients that can be a helpful sounding board and help you solve problems.
For people with ALS, multidisciplinary care has been shown to extend survival and improve life quality. We are committed to expanding this network insuring people with ALS, regardless of where they live, have access to this type of critical care.
ALS, or amyotrophic lateral sclerosis, affects nerve cells and muscles. We have the resources to help you understand your diagnosis and connect with others.
ALS is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord. Initial symptoms and progression vary between individuals.
We discussed the incredible strides being made in the science of preventing ALS with Dr. Stephen Goutman, Director of the Pranger ALS Clinic and Associate Professor of Neurology at the University of Michigan.
The ALS Association combines global research, public policy and outreach, and family and patient care services to be the leader in the fight to end ALS.
While good nutrition is important for everyone, it can be very challenging for people living with ALS to maintain a healthy diet due to chewing and swallowing difficulties. Improper nutrition can cause people to feel tired, lower their resistance to infection, speed the loss of muscle mass, cause constipation and lead to a host of other health problems. Below are some important facts to know and tips on maintaining good nutrition despite having ALS.
This week the Lightning Foundation and the Lightning Community Heroes program honored Gary Dassatti for being a courageous, selfless, and noble leader who has championed the fight against ALS
For most families living with ALS, in-‐home care becomes a necessity at some point. The expenses associated with in-‐home help can add up quickly. Public insurance plans (such as original Medicare and Medicaid) and private insurance plans (such as Medicare Advantage, an employer’s health insurance plan, or long-‐term care insurance) may help to cover some of the costs associated with in-‐home help, but most of the financial burden is usually borne by the family.