Camp HLC is typically a three-day, overnight retreat for children and young adults, ages 6-21, who have or have had a loved one battling ALS. Families are invited as well. It is an opportunity to have fun, be challenged through team building exercises, and meet peers who are going through a similar experience.
Camp HLC is provided free for our ALS families by Hope Loves Company and our sponsors. All meals and activities are included.
We're excited to once again offer our Virtual ALS Symposium this year! Mark your calendars for December 14th and join us to learn more about research updates, advocacy efforts in research and expanded access, and more! Our special guest lineup includes:
Dr. James Berry, MD, MPH
The Healy Center for ALS, MGH 2021 Research Updates & Highlights
Dr. Jinsy Andrews MD, MSc
Eleanor & Lou Gehrig ALS Center, Columbia University Advocacy & Expanded Access to Investigational Drugs
Lon Haldeman and Susan Notorangelo are working with area ALS Chapters to form a fund in the memory of their daughter Ericka Notorangelo Haldeman who passed away from infantile Lou Gehrig's Disease when she was less than 11 months old.
Join both the Massachusetts & Northern New England Chapters for this engaging series of presentations for ALS Family Caregivers!
This no cost, free program with cover topics including nutrition, mobility, personal care, respiratory needs, communication support, and caregiver resources on the following dates:
