Camp HLC (Hope Loves Company) is a three-day, overnight retreat for children and young adults, ages 6-21, who have or have had a loved one battling ALS, as well as their families. It is an opportunity to have fun, to be challenged through team building exercises and to meet peers who share in their experiences.
Camp is provided free for our ALS families by Hope Loves Company and our sponsors. All meals and activities are included.
The South Florida CEO Soak is a corporate version of the Ice Bucket Challenge engaging corporate leadership to get soaked while raising money to benefit The ALS Association Florida Chapter. South Florida area executive leaders that commit to being a “Soakee” will raise awareness and funds for ALS patient care, research and advocacy – providing critical support to ALS families. It will all culminate at Tigertail Lake Recreational Center in Dania Beach where the "Soakee" will be soaked in their work attire.
Walk Your Way gives you control of what Walk Day looks like. Take a walk or ride around your neighborhood, nearby park, or living room. Bring your team together in a way that works for you, take photos, spread the word, and make new memories.
All Together Now: Perspectives on Organizing Your Medical Care and Maximizing Your Team’s Effectiveness
This session will feature a panel of people living with ALS, Caregivers, and Clinic Professionals and allow time for Q and A from the audience. Tools such as the Critical Medical Information app and other strategies will be discussed.
This year the ALABAMA Statewide Walk to Defeat ALS will be Virtual or a Walk where you are event, but you will register your team for the area closest to where you live:
"Anticipatory Grief" is the third "Caring for the Caregiver" webinar in our series this year.* Join us on Thursday, August 12, 2021 from 1:30-3:00 PM for this webinar discussion. Susan Blakeslee, Licensed Mental Health Counselor at VITAS Healthcare, will be presenting on anticipatory grief, a feeling of grief occurring before an impending loss.
*The "Caring for the Caregiver Webinar Series" is sponsored by Mitsubishi Tanabe Pharma America.
The Jacksonville CEO Soak is a corporate version of the Ice Bucket Challenge engaging corporate leadership to get soaked while raising money to benefit The ALS Association Florida Chapter. Jacksonville executive leaders that commit to being a “Soakee” will raise awareness and funds for ALS patient care, research and advocacy – providing critical support to ALS families. It will all culminate at TIAA Bank Field - North End Zone Spa & Cabana area where the "Soakee" will be soaked in their work attire.
The Orlando CEO Soak, presented by AdventHealth, is a "grown up" version of the Ice Bucket Challenge engaging corporate leadership to get soaked while raising money to benefit The ALS Association Florida Chapter. Orlando executive leaders that commit to being a “Soakee” will raise awareness and funds for ALS patient care, research and advocacy – providing critical support to ALS families. It will all culminate at an Orlando fountain where the "Soakee" will be soaked in their work attire.