All Together Now: Perspectives on Organizing Your Medical Care and Maximizing Your Team’s Effectiveness
This session will feature a panel of people living with ALS, Caregivers, and Clinic Professionals and allow time for Q and A from the audience. Tools such as the Critical Medical Information app and other strategies will be discussed.
May is ALS Awareness Month, and The ALS Association Alabama Chapter is creating awareness and understanding of this devastating disease by bringing attention to the needs of people across the state who are living with ALS.
The reality of ALS can be difficult to understand. Imagine for a moment; you seem to be shorter of breath than normal – or friends and loved ones point out that your speech is slurred. Maybe you seem to be experiencing weakness in your arms or legs or falling frequently and you are not sure why. After months and months of doctor’s appointments and tests – each increasing in invasiveness and pain – no answers. Maybe you had carpal tunnel surgery – but it did not seem to help, were referred to a psychiatrist – but these things are not in your head.