Over the past 11 years, the Dogleg Open has raised more than $95,000 to help fund research and patient support for the thousands of ALS and MS patients here in Wisconsin.
Camp HLC is typically a three-day, overnight retreat for children and young adults, ages 6-21, who have or have had a loved one battling ALS. Families are invited as well. It is an opportunity to have fun, be challenged through team building exercises, and meet peers who are going through a similar experience.
Camp HLC is provided free for our ALS families by Hope Loves Company and our sponsors. All meals and activities are included.
"Preparing for a Hurricane – for ALS Family Caregivers" is the second "Caring for the Caregiver" webinar of our 2022 series!*
Join us on Thursday, May 26, 2022 from 2:00-3:30 PM ET for this discussion.
Steven Lerner, FPEM, CEM, NEMEA, senior planner for the Seminole County Office of Emergency Management, will be discussing hurricane preparedness for families affected by ALS in Florida and answering questions.
*The "Caring for the Caregiver" Webinar Series is sponsored by Mitsubishi Tanabe Pharma America.
ALS, also known as Lou Gehrig’s Disease, is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. The disease robs people of the ability to walk, talk and even blink an eye. It traps them inside a body they no longer can control and ultimately prevents them from breathing as it takes their life. People with ALS lose the power to use their legs, hold someone close, and say, “I love you,” before their bodies gradually shut down. . From onset to diagnosis, life expectancy is 2 – 5 years.
"Frontal Temporal Dementia (FTD) and Cognitive Changes as They Relate to ALS" is the first "Caring for the Caregiver" webinar in our series for 2022.* Join us on March 24, 2022 from 2:00-3:30 PM ET for this webinar discussion. Dr. Barbara Simmonds is a clinical psychologist who will be presenting on the topic.
*The "Caring for the Caregiver Webinar Series" is sponsored by Mitsubishi Tanabe Pharma America.