Past Events

Saturday
Apr
23
2022
Monday
Apr
18
2022
Saturday
Apr
9
2022
Friday
Apr
8
2022
Targeting ALS Clay Shoot

ALS, also known as Lou Gehrig’s Disease, is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. The disease robs people of the ability to walk, talk and even blink an eye. It traps them inside a body they no longer can control and ultimately prevents them from breathing as it takes their life. People with ALS lose the power to use their legs, hold someone close, and say, “I love you,” before their bodies gradually shut down. . From onset to diagnosis, life expectancy is 2 – 5 years.

Friday
Apr
8
2022
Saturday
Apr
2
2022
Thursday
Mar
24
2022
Caring for the Caregiver: Frontal Temporal Dementia (FTD) and Cognitive Changes as They Relate to ALS

"Frontal Temporal Dementia (FTD) and Cognitive Changes  as They Relate to ALS" is the first "Caring for the Caregiver" webinar in our series for 2022.* Join us on March 24, 2022 from 2:00-3:30 PM ET for this webinar discussion. Dr. Barbara Simmonds is a clinical psychologist who will be presenting on the topic.

*The "Caring for the Caregiver Webinar Series" is sponsored by Mitsubishi Tanabe Pharma America.

Tuesday
Dec
14
2021
Massachusetts Virtual ALS Symposium

We're excited to once again offer our Virtual ALS Symposium this year! Mark your calendars for December 14th and join us to learn more about research updates, advocacy efforts in research and expanded access, and more! Our special guest lineup includes:

Dr. James Berry, MD, MPH
The Healy Center for ALS, MGH
2021 Research Updates & Highlights

Dr. Jinsy Andrews MD, MSc
Eleanor & Lou Gehrig ALS Center, Columbia University
Advocacy & Expanded Access to Investigational Drugs

Saturday
Dec
11
2021