Our Vision, Mission & Values


Create a world without ALS


To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.

Core Values:


Guiding Principles are:

  • People with ALS and their families come first
  • One team, one vision, one mission
  • Accountability and transparency
  • Diversity and inclusion
  • Open communication and dialogue
  • Innovation
  • Collaboration

Strategic Outcomes:

  • Recognized interdependence between care and research.
  • People with ALS and their families have:
    • Access to consistent care, treatment and services
    • Resource and support services that enhance quality of life
    • Quality care and support leveraged by collaboration with partners
  • Discover new life-extending treatment:
    • Drive worldwide research agenda with urgency and boldness to improve outcomes for people with ALS
    • Collaborate with partners in a comprehensive and diverse research model
    • Facilitate the rapid development of new treatment options to extend and enhance quality of life while seeking a cure

Diversity, Equity and Inclusion:

The ALS Association is dedicated to cultivating an environment in which all voices are raised and heard as we serve, engage, advocate for, and empower people with ALS. We will maintain a community that resolves inequities that impede progress in the fight against ALS and ensures that our mission-driven work is informed by multiple perspectives and experiences.

Our Promise

  • We pledge to ensure dignity and opportunity for all people engaged in the fight to end ALS.
  • We pledge to invest in recruiting and retaining a workforce and volunteer cohort that is representative of the ALS community.
  • We pledge to be thoughtful and judicious in our language and culture-building, seeking out diverse perspectives and experiences to achieve our vision of a world without ALS.

Health Equity Consensus Statement

Developed by the National Health Council (NHC), The ALS Association is proud to join 77 other health organizations who are committed to working together to address critical areas of health equity. The NHC will continue to promote this statement to call attention to the patient community’s commitment to health equity and advance policy priorities and system change. Read the statement in its entirety HERE.

Print Friendly and PDF