Jack Norton Caregiver Respite Program

The Jack Norton Caregiver Respite Program is dedicated to serving family caregivers North Dakota and South Dakota. Eligible caregivers must live with the person with ALS.

What is Respite?

Being a family caregiver, while a fulfilling role, can consume a great deal of physical, mental, and emotional energy. Respite is important because it gives primary caregivers of persons with ALS an opportunity to create a plan of care for themselves; something a caregiver often overlooks. Respite means an interval of rest or relief. Respite gives you, the primary caregiver, an opportunity to take a much-needed break from the daily care that you give to your loved one. There are a number of ways you can spend your "time off" during your respite.

Here are just a few examples:
  • Go to the movies
  • Read a book or take a nap
  • Treat yourself to lunch at a restaurant with a friend
  • Take a walk
  • Get your hair cut
  • Attend a caregiver support group
Program Eligibility
  • The person living with ALS must reside in either North Dakota or South Dakota.
  • The applicant must be the primary caregiver of the person with ALS for whom they administer care and must reside with them in the home.
Program Options : 
  • Coordinated Respite – The ALS Association connects the qualifying caregiver to one of our partnered home care agencies that staffs a paid professional caregiver for you in your home.


  • Self-Directed Respite – The ALS Association provides reimbursement to the qualifying caregiver to hire their own employee, other than a spouse/partner, parent or child of the person with ALS.

Once your application is submitted, please allow up to two weeks for a care services staff member to be in touch to further discuss your needs and the options available through this program.

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      If you have questions or wish to provide feedback about the Jack Norton Caregiver Respite program, please contact: respitemn@als.org or call our local office at 888-672-0484.

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