Image

We create workshops and presentations designed to help you learn more about clinics, equipment, resources, and navigating the disease. We host a recurring series called Navigating ALS for newly diagnosed patients as well as caregiver and youth-specific workshops.

Upcoming Presentations 

Navigating ALS: Assistive Technology with Improvability

Date: Octobery 8, 2024
Time: 12:30 p.m. CT
Description: Navigating ALS is a special series for newly diagnosed families. In our next session, we'll review the assistive technology available and its benefits for people living with ALS.
Audience: Newly diagnosed with ALS and family
Register here!

Estate Planning with Cindy's Angels

Date: October 10, 2024
Time: 12:00 p.m. CT
Description: Join the ALS Association for a presentation on Estate Planning. During this presentation, you will get the chance to learn the details of estate planning as well as ask questions. We hope you will join us!
Audience: People living with ALS and caregivers
Register here!

Legacies

Date: October 18, 2024
Time: 12:00 p.m. CT
Description: Join us for a very special presentation as we welcome both Ronan and Keaton Kotiya. Between a podcast and cookbook, both have found ways to honor their father who passed away from ALS.
Audience: People living with ALS and caregivers
Register here!

Running on Empty (Recording)

Date: October 22, 2024
Time: 11:00 a.m. CT
Description: For caregivers of a person with ALS, taking time for self-care is more easily said than done. But putting off self-care can lead to burnout, making it more difficult to care for a loved one with ALS. Do you have days or even weeks where you feel you are simply "Running on Empty"?
Audience: Caregivers
Register here!

Navigating ALS: Employment/Insurance

Date: November 12, 2024
Time: 12:30 p.m. CT
Description: Navigating ALS is a special series for newly diagnosed families. After an ALS diagnosis there are many uncertainties for finances from employment to insurance needs. In this session, we'll discuss considerations to make while navigating these changes and give overviews of some of the government assistance programs available to people living with ALS in Texas.
Audience: Newly Diagnosed with ALS and Family
Register here!

National Caregivers Month Panel

Date: November 20, 2024
Time: 12:30 p.m. CT
Description: Join us as we recognize our ALS caregivers this very special month! We will be having a panel of caregivers that take care of our loved ones with ALS. We will talk about what it means to care give as well as the challenges and any advice they may give to others.
Audience: People living with ALS and caregivers
Register here!

Stress Less on Purpose (Recording)

Date: November 26, 2024
Time: 11:00 a.m. CT
Description: A workshop for people living with ALS, their caregivers, and heck-for all of us! A workshop about self-care and direction in the midst of ALL of life’s curveballs. Participants will receive an easy and effective first aid kit of exercises for easing your body’s reaction to stress, gain a renewed or clarified understanding of your personal “why”, and how trauma can help guide you in living life more PurposeFULLy.
Audience: Caregivers
Register here!

Braving the Storm: A Mother’s Candid Journey as an ALS Widow

Date: December 4, 2024
Time: 1:00 p.m. CT
Description: In this intimate and heartfelt interview, we sit down with Siobhan Kotiya, who lost her husband, Rupesh, to ALS in March 2023. Siobhan will share insight into her personal journey of love, loss, uncertainty, and resilience as she juggles being a mom and widow and navigating grief in the next chapters of her life- both personally and professionally. Through candid conversation, we’ll explore the profound impact of grief, the challenges of single parenthood, and the strength required to rebuild life after loss. Siobhan paints a powerful picture of the bereavement journey-a journey of mountains, valleys, endurance, hope, and the enduring power of love.
Audience: People living with ALS and caregivers
Register here!

Candlelight Remembrance Event 

Date: December 5, 2024
Time: 7:00 p.m. CT
Description: We are not alone in our heartache and grief when we lose a loved one. It can be comforting to know that others share in your pain and understand a journey that is very unique to our ALS community. Join us as we remember and honor those we have lost to ALS.
Audience: Surviving Family and Friends
Register here!

Navigating ALS: Multidisciplinary Clinic 

Date: December 9, 2024
Time: 12:30 p.m. CT
Description: Navigating ALS is a special series for newly diagnosed families. In our next session, we'll discuss the benefits of attending multidisciplinary clinics. Our multidisciplinary care model brings together a team of specially-trained health care professionals who can address the many needs of people living with ALS, allowing them to receive care from each discipline during a single visit.
Audience: Newly Diagnosed with ALS and Family
Register here!

Navigating ALS: Balance Nutrition and Diet 

Date: January 13, 2025
Time: 12:30 p.m. CT
Description: Navigating ALS is a special series for newly diagnosed families. In our next session, we'll review the importance of balancing nutrition and a healthy diet and the benefits for people living with ALS. 
Audience: Newly Diagnosed with ALS and Family
Register here!

Stress Less on Purpose 

Date: January 28, 2025
Time: 11:00 a.m. CT
Description: A workshop for people living with ALS, their caregivers, and heck-for all of us! A workshop about self-care and direction in the midst of ALL of life’s curveballs. Participants will receive an easy and effective first aid kit of exercises for easing your body’s reaction to stress, gain a renewed or clarified understanding of your personal “why”, and how trauma can help guide you in living life more PurposeFULLy. 
Audience: Caregivers
Register here!