Care Services
We offer a full range of services to guide and assist you as you learn more about ALS. Download our Chapter Services Brochure for information on programs for patients, families, caregivers and allied health professionals. Our staff is here Monday through Friday to answer any questions you may have. Please don't hesitate to call, text, or e-mail us for more information.
Find Your Care Service Coordinator
ALS Care Grant Programs
CLICK HERE TO ACCESS THE NEW GRANT APPLICATION FORM
The ALS Grant Application will allow requests for financial support for:
- Hired care and respite services (provider must NOT be a resident of the home)
- Home and vehicle modifications
- Medical equipment, medications, and copay/co-insurance/out-of-pocket costs
- Access to ALS specialty care/clinic, physician, allied health professionals and clinical trials
Funding for the ALS Grant is limited to a maximum of $2000 per year per client. Grants are provided based on availability of funds. There is no guarantee, entitlement, and no promise/entitlement of funding. Grant funding is not provided in return for any services, reviews, or participation in awareness, public policy, or volunteer role(s).
The ALS Association Grant assists with the care and needs of those living with ALS/MND. The ALS Association assumes no responsibility or liability for any direct or indirect services, products, or client care or for the care arrangement and/or business relationships between the person living with ALS/MND (including their loved ones) and their selected product or service provider. The ALS Association assumes no fiscal responsibility beyond the approved grant amount.
Equipment Loan Closet
The Chapter's Equipment Loan Closet makes used and donated medical equipment available to persons living with ALS. A confirmation of diagnosis may be requested before loans can be approved. Interested families can contact the Chapter's loan closet manager, Josh Mansfield, at [email protected] or 216-306-0286 or call the office at 216-592-2572.
Please note: equipment availability is subject to change frequently. Except where noted below, all loans remain the property of the Chapter and must be returned when no longer used.
Some items may need approval or recommendation from a specialized therapist such as a physical therapist, occupational therapist, respiratory therapist, speech pathologist or nutritionist.
The ALS Office Storage Area
In most cases, items must be picked up and returned to the office. Items must be clean and sanitized before accepted into the loan closet. Delivery is sometimes available for larger items, however, it can take several weeks to arrange.
Manual Wheelchairs: styles and sizes vary, and may range from transport models to standard models to large, non-folding custom seating with tilt/recline
Power Wheelchairs: styles and sizes vary and subject to change. NOTE: All power wheelchair loans require a seat evaluation by a licensed OT, PT, seating specialist or ATP. If you do not have insurance, the Chapter can provide assistance with the cost of an evaluation.
The Association helps clients who are uninsured or under-insured or those who are awaiting insurance funding and delivery of their own custom power wheelchair. Therefore, the following wheelchairs are the most in demand for persons with ALS:
Complex, high-end power wheelchairs with power backrest tilt/recline and power elevating legs with rehab seating. Makes and models include Pride Quantum (Q6 edge or similar) Permobil (M300 or 600 or C series or similar). Donations of wheelchairs must be 2 to 3 years of age, in good working condition with working batteries and all working parts.
Power scooters: styles and sizes vary and subject to change
Rollator style walkers: (rollators are walker with a seat and hand brakes) styles and sizes vary
Bedside Commode and Roll in Shower Chairs: limited quantity. (these cannot be returned to the loan closet once used)
Bed cane/handle to provide a grab bar to turn in bed or to aid in standing
Suction, BiPAP and cough assist machines
ITEMS NOT ACCEPTED
Hospital beds
Hoyer lifts (portable lifts may be accepted if space is available)
Lift chairs/recliners/LaZBoy
Power wheelchairs not in working order (accepted chairs must have working batteries, motor, tires, etc)
Used commodes and shower chairs
Enteral formula (for feeding tubes), Ensure, Boost, and other formulas
Food thickeners
Gauze pads and feeding tube supplies
Incontinence products: blue pads, disposable underwear, Depends and Poise pads
Supplies for suction and cough assist machines
Clothing and linen
As an alternative for items not accepted in our loan closet, we recommend MedWish International, Services for Independent Living, Holy Family Hospice, or your local nursing or hospice facility.
