Past Events

Tuesday
Apr
30
2024
Running on Empty

For caregivers of a person with ALS, taking time for self-care is more easily said than done. But putting off self-care can lead to burnout, making it more difficult to care for a loved one with ALS. Do you have days or even weeks where you feel you are simply "Running on Empty"?

Tuesday
Apr
23
2024
Enhancing Quality of Life: Occupational Strategies for ALS Management

Join the ALS Association and Katie Metheny in this virtual presentation focused on Occupational Therapy as part of the ALS journey.

Tuesday
Apr
9
2024
Navigating ALS : Assistive Technology

Navigating ALS is a special series for newly diagnosed families. In our next session, we'll review the multidisciplinary care approach and its benefits for people living with ALS. 

Thursday
Apr
4
2024
ALS Focus

Learn about the latest ALS Focus survey and find out why we need to learn from your experiences.

Wednesday
Mar
27
2024
To Taste

Join us for a special cooking presentation from our friends at To Taste as they give us a delicious recipe for the Spring. Cooking Demo and Meal Prep for the ALS Journey.

Tuesday
Mar
26
2024
Stress Less on Purpose Workshop

A workshop for people living with ALS, their caregivers, and heck-for all of us! A workshop about self-care and direction in the midst of ALL of life’s curveballs. Participants will receive an easy and effective first aid kit of exercises for easing your body’s reaction to stress, gain a renewed or clarified understanding of your personal “why”, and how trauma can help guide you in living life more PurposeFULLy.

Saturday
Sep
9
2023
Thursday
May
26
2022
Caring for the Caregiver: Preparing for a Hurricane – for ALS Family Caregivers

"Preparing for a Hurricane – for ALS Family Caregivers" is the second "Caring for the Caregiver" webinar of our 2022 series!* 

Join us on Thursday, May 26, 2022 from 2:00-3:30 PM ET for this discussion.

Steven Lerner, FPEM, CEM, NEMEA, senior planner for the Seminole County Office of Emergency Management, will be discussing hurricane preparedness for families affected by ALS in Florida and answering questions.

*The "Caring for the Caregiver" Webinar Series is sponsored by Mitsubishi Tanabe Pharma America.

 

Thursday
Mar
24
2022
Caring for the Caregiver: Frontal Temporal Dementia (FTD) and Cognitive Changes as They Relate to ALS

"Frontal Temporal Dementia (FTD) and Cognitive Changes  as They Relate to ALS" is the first "Caring for the Caregiver" webinar in our series for 2022.* Join us on March 24, 2022 from 2:00-3:30 PM ET for this webinar discussion. Dr. Barbara Simmonds is a clinical psychologist who will be presenting on the topic.

*The "Caring for the Caregiver Webinar Series" is sponsored by Mitsubishi Tanabe Pharma America.