May is ALS Awareness Month

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ALS is a progressive disease in which a person’s brain loses connection with the muscles, slowly taking away their ability to walk, talk, eat, and eventually breathe. There is no cure for ALS, but there is hope. 

Each May, our community comes together to raise awareness of the disease, share stories from people living with ALS, show our support for caregivers, families, and care workers, and shine a spotlight on those who dedicate their lives to finding a cure. 

We are committed to making ALS livable for everyone, everywhere, until a cure is found. 

Join us today in the fight against ALS and let’s see it end. 

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Share Your ALS Story

Help spread awareness and inform change for people with ALS. Use #MyALSStory.

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Become an Advocate

Help change laws and policies that affect people with ALS and their families.

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Help us accelerate research and provide care for families impacted by ALS.

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Katy Adams

An ALS Story: Katie Adams

“I knew as soon as I was diagnosed that I wanted to do something to help others who had ALS and others who were going through the diagnosis process.” – Katie Adams, Advocate and Person Living with ALS.

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Whether as a person living with ALS or as a caregiver or loved one to someone living with the disease, sharing your story can help others in the ALS community and beyond feel connected to the impact ALS has on the people it touches. 

Add #MyALSStory so we all can follow along.

Share your storY


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The Ice Bucket Challenge: 10 Years of Impact

Raising awareness and funds around the globe, the Ice Bucket Challenge brought the community together and changed the trajectory of the fight against ALS forever. 

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Inform others about ALS and
its effects on those living with the disease and their families.


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5,000+ people
are diagnosed every year 

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Every 90 minutes
someone is diagnosed with ALS
and someone passes away from it


2-5 years
is the average life expectancy 

More Ways to Participate

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Join Us at ALS Nexus

ALS Nexus brings together leaders in the ALS community to connect, collaborate, and change the future of ALS.

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Follow ALS news

Follow ALS News

Stay up-to-date on all the latest news and stories from the ALS community.

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Get Involved

Help create a world without ALS by getting involved in the way that best suits YOU!

Join uS

Your support helps accelerate research, advocate for policy change, and provide critical care for families impacted by ALS.
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