May is ALS Awareness Month

Man living with ALS

ALS is a progressive disease in which a person’s brain loses connection with the muscles, slowly taking away their ability to walk, talk, eat, and eventually breathe. There is no cure for ALS, but there is hope.

Each May, our community comes together to raise awareness of the disease, share stories from people living with ALS, show our support for caregivers, families, and care workers, and shine a spotlight on those who dedicate their lives to finding a cure.

We are committed to making ALS livable for everyone, everywhere, until a cure is found.

And we want YOU to join us.

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5,000+ people
are diagnosed every year 

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Every 90 minutes
someone is diagnosed with ALS
and someone passes away from it

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2-5 years
is the average life expectancy 

Inform others about ALS and
its effects on those living with the disease and their families.

Download ALS Facts

An ALS Story: Ken Paves

"The whole reason to share her story is because, ironically, we've been able to find a way to embrace this and still live a great life together, and celebrate it, and find beauty in this new way of life for her.” – Ken Paves, celebrity hairstylist, beauty expert and caregiver to his mother who recently lost her battle with ALS.

Read more

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Follow ALS News

Stay up-to-date on all the latest news and stories from the ALS community.

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Become an Advocate

Help change laws and policies that affect people with ALS and their families.

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Get Involved

Help create a world without ALS by getting involved in the way that best suits YOU!

Join uS

An ALS Story: The Woody Family

Lamar and Kristina Woody are a lot like any other busy, hard-working couple. They’re juggling careers, education and the day-to-day activities of their sassy and smart nine-year-old daughter, Natalie. Married for over twelve years, they love laughter, music and spending time with family and friends. They are also living with ALS.

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Whether as a person living with ALS or as a caregiver or loved one to someone living with the disease, sharing your story can help others in the ALS community and beyond feel connected to the impact ALS has on the people it touches.

Share your storY

The ALS Association is committed to making ALS livable for everyone, everywhere, until a cure is found. Learn more about the progress that’s been made in the fight against ALS in the past year.
Your support helps accelerate research, advocate for policy change, and provide critical care for families impacted by ALS.
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