ALS is a progressive disease in which a person’s brain loses connection with the muscles, slowly taking away their ability to walk, talk, eat, and eventually breathe. There is no cure for ALS, but there is hope.
Each May, our community comes together to raise awareness of the disease, share stories from people living with ALS, show our support for caregivers, families, and care workers, and shine a spotlight on those who dedicate their lives to finding a cure.
We are committed to making ALS livable for everyone, everywhere, until a cure is found.
And we want YOU to join us.
are diagnosed every year
Every 90 minutes
someone is diagnosed with ALS
and someone passes away from it
is the average life expectancy
An ALS Story: Ken Paves
"The whole reason to share her story is because, ironically, we've been able to find a way to embrace this and still live a great life together, and celebrate it, and find beauty in this new way of life for her.” – Ken Paves, celebrity hairstylist, beauty expert and caregiver to his mother who recently lost her battle with ALS.
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Help create a world without ALS by getting involved in the way that best suits YOU!
An ALS Story: The Woody Family
Lamar and Kristina Woody are a lot like any other busy, hard-working couple. They’re juggling careers, education and the day-to-day activities of their sassy and smart nine-year-old daughter, Natalie. Married for over twelve years, they love laughter, music and spending time with family and friends. They are also living with ALS.
Whether as a person living with ALS or as a caregiver or loved one to someone living with the disease, sharing your story can help others in the ALS community and beyond feel connected to the impact ALS has on the people it touches.