Submitted by: Sandy B. on Wed, 12/13/2023

My genetic test came back , saying I am a carrier of FIG 4 and positive on the C9 with 44 repeats . I went into Research right away !! I go to NIH in Bethesda Maryland . I am now going once a year . I am symtom free as of now ! We have lost 6 family members , so far !! Scared to death, but very lucky to be alive !!

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