Submitted by: Cynthia E. on Mon, 10/09/2023

I was diagnosed with Familial SD01 ALS in April of 2022. I started these injections in June of 2022. After watching my family deteriate quickly from this disease, i feel this injection is definitely slowing down the progression for me. Once this drug became FDA approved, my insurance company did not approve. New York State insurance carriers need to review their policies as well!

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