Submitted by: Denise D. on Fri, 07/14/2023

We live in Pennsylvania….Rick, my husband had a small wheelchair until our dr. Said it’s time to get you a chair that will meet your needs. He ordered it and it was one of those fancy ones. Medicare covered it; however it wouldn’t cover the lift. That was considered a “luxury”. Our local ALS chapter covered that for us. We were so glad…. It cost $1000. Another area we ran into was our ventilators… sip and puff were covered under Medicare until he went on Hospice. Then we get this $1400 bill each month. Everyone was working with me to figure this out. $8000 was accumulated and owed. After he passed, the head guy said to not worry about it…. No bill. I was thankful but the financial stress on top of what I was dealing with each day wasn’t very pleasant! I sure miss my Rick.

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