Submitted by: Philip K. on Sun, 05/14/2023

What an amazing recount of their journey! I also have ALS, and while my symptoms are different, I can understand exactly what was felt by all in this story. I also have a friend that was diagnosed with ALS just a couple months after I was. We have known each other for years, but recently it seems that only the two of us can understand each other and what it feels like. We have the same Dr at Northwestern Medicine in Chicago, and even carpool and coordinate our Dr visits together. We all take the final step alone, but it's priceless to have someone hold our hands on the long and miserable journey. I am travelling this year while I can still walk. I've already made a trip to Mexico, and Thailand and Bali are next! In some ways, ALS was a strange gift. I now only do the things that make me happy.

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