I have Huntington's disease and run a Facebook group focused on research and advocacy. My background is financial.
I made a quick spreadsheet showing Huntington's disease costs the USA $15 billion annually.
How much does ALS cost USA annually?
I want to merge effort on rare neurological and ask for 3 billion annually to ALS til cured, then to Huntingtons and down the line and I think the cost of the illness justify it.