Submitted by: Debra D. on Thu, 01/05/2023

I am the primary care giver for my husband who has ALS. We receive no benefit from Medicare for any caregiving and are seniors on a fixed income. Paying for private caregiving is a financial struggle. We appreciate the 20 hours per month Respite Care reimbursement from the Michigan ALS Association. However, I believe most caregivers are entitled to more than 20 hours of “mental health” care per month!!

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